Tocilizumab

[Beth72]

I started my injections on Sunday first one of tocilizumab since Iv started with them I’m very tired and no energy and don’t fancy eating at all has anyone else been like this on these meds?

[davannh]

No, I have been on it since 2010. For me it was a game changer. Hopefully you will feel better. X

[ruth_p]

It could be a coincidence and maybe the change in weather is affecting you. I would definitely keep an eye on it though. Hopefully you will feel better.

[Silverpixie]

Absolutely life changing drug for me (still get flares but can manage these) however it took 3 months to work for me but wow did it work! It's only been a few days for you and is unlikely to be the tocilizumab. Hope it works for you but give it time.

[Brushwork]

I think my first dose left me feeling a bit tired, maybe even a bit ‘off’ but that only lasted for first couple of weeks and not at all bad enough to stop me. It has been life changing for me too, absolutely amazing. I’m now 16 weeks in, and wouldn’t want to swap it or stop it.