Hi, hope everyone is keeping well. I’ve just spoken to Rheumatologist and they are suggesting that I try tocilizumab injection. How affective have people found this drug and what kind of side effects have you experienced? How often do you take it? Always worried before starting something new but my arthritis has flared up again.
tocilizumab: Hi, hope everyone is keeping well. I’ve... - NRAS
I didn't do well on Tocilizumab but that is just me. You will find lots of people who do really well on it. If you put Tocilizumab in the search field you will find lots of people sharing their experience. I always think it's worth giving new medication a try because it might just be what you're waiting for. Good luck.
Hi, this is my first time chatting on this site...have been living with RA for about 10 years. First few years, I was on Methotrexate and was pretty good but unfortunately, although it was great for my RA, the downside was that it caused a breathing prob. 3 years + later, they're still trying to find something that will help. Have tried Salazopyrin, hydroxycloroquine, long acting steroid injections, Benepali, Rituximab. Had to take oral steroids a few times last year in desperation. At beginning of March, was going to start Tocilizumab infusions but because of coronavirus, understandably was cancelled.
However, I'll be having my first infusion tomorrow morning...wahoo..I hope!!
So Flowers, will let you know how it goes. Although, I've got a bit of trepidation...I just want a bit of my normal life back
Aww I wish you well for tomorrow! Really hope it works for you. I was also on methotrexate for many years but eventually caused me a lot of sickness and effected my liver so had to stop. Do you know what the difference is to having the tocilizumab as an infusion to having it as weekly injections? As they’ve suggested I have the injections.