Tocilizumab

[Beth72]

Been to see my consultant today and I’ll be starting this injection in 4 weeks (tocilizumab) I was wondering if anyone on here is on this and has it helped them and if there is any side effects ❤️

[Neonkittie17]

Good luck ! I hope to swap to it later in the year.

[Hiland]

Hi, I started 6 weeks ago, due to relapses, and have had 5 injections so far. Apart from some sharp stabbing pains in my head usually on the day of the injection and for a couple of days after, I have had no other side effects. I am also on 12.5 mg Prednisone, tapering down by 2.5 every 2 weeks. Good luck!

[Chezza56]

I've recently started them, the least painful injection I've done so that's a plus point. Haven't done them regularly enough yet to see any physical benefit. Hope they work for you xx

[Silverpixie]

I have been on this for 4 years. It was my fifth biologic. None of the others worked. It really has been life changing. I get occasional flares (got one now) and occasional infections. Took 12 weeks to kick in. Hope it works for you.

[catpurr]

Hi Beth, I've been taking it for 3 years, it is my 6th RA drug and it works well for me. I found the injection site became quite hot and inflamed and my RA nurse suggested that I stop pinching the site as I inject and it is less problematic now. Good luck.

[oldtimer]

There are quite a few previous posts about this. If you put the name of the treatment in the search box top right you should find them.

[Brushwork]

I’ve been on it for 10 weeks. It’s been great for me, mild side effects if any. RA is controlled, so life changing. Good luck

[Vonnie10]

I’m in it it’s been great for my hands and wrist but no so great for my ankles and feet walking is difficult or standing for any length of time.

[Beth72]

Thank you everyone for your messages I can’t wait to start them and I hope it works for me because iv tried everyone of them the consultant told me this is the last one fingers crossed 🤞

[Paisley58]

I was only on this for 9mths and I had zero improvements and that was due to the fact that everytime I used it I would get hayfever on acid type side effects. I was given antihistamine to take two days before my injection day and to take them on the day and two days after that and it didn't make a difference so the pharmacist said I was allergic to Tocilizumab and so I stopped taking it

Wishing you the best of luck and hope it works for you.