Hot, hot , hot.: Hi everyone, just a quick question, do... - NRAS

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nellysgran profile image
38 Replies

Hi everyone, just a quick question, do any of you lovely people suffer with excessive sweating......i know its warm and i do live in a hot country but i am soaking wet every day especially my face and neck, even had my hair cut really short, its been like this for months now and was just wondering if it maybe had anything to do with medication or if anyone else suffers.

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nellysgran profile image
nellysgran
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38 Replies
PinkLamb profile image
PinkLamb

Hi nellysgran,

Yes, you are not alone!!! I sweat terribly too, it's a nightmare, one minute I'm OK then it just comes from nowhere for a few minutes then gone, I find been in bed the worst, I have to kick off the duvet until it passes, then cover up again, I have a fan at the side of my bed, I couldn't cope without it, and then there's work!! Arghhhh!! I think 🤔 it's the meds that cause it??

X

JFlay profile image
JFlay

Yes I do too and I'm well past the menopause 😒 I wake up in the night dripping especially head and neck... awful 😓

vonniesims profile image
vonniesims in reply toJFlay

me too. Not every night

Mmrr profile image
Mmrr

I live in a cold country and I sweat too. I suspect its part of the RD, rather than the meds for me.

nellysgran profile image
nellysgran

Thank you for your replies, so i am not alone i just wish i knew what was causing it and how to stop it.....it is so annoying all the time.... i am dripping now as i type.

JFlay profile image
JFlay

I think Mmrr is right. I read somewhere that long-term inflammation in the body causes heat but can't remember where I read it.

RAlife2018 profile image
RAlife2018

Perhaps? I’ve noticed similarly, sweats at night and struggling with Deodorants no longer working for me. I have never had this issue until now.

PinkLamb profile image
PinkLamb in reply toRAlife2018

Hi RAlife2018,

I have used micham deodorant for some time now, I know it's more expensive, but I find it works better than the other brands

X

Downtime profile image
Downtime in reply toRAlife2018

I’ve struggled with deodorants not working for a few years but now the RA is better controlled with a biologic it’s much better, so must be the RA.

I sweat terribly when on prednisone, just comes from nowhere! Face, neck, and cleavage, oh the joys of medication 🤣🤣 🤗 X

hatshepsut profile image
hatshepsut

I also have problems with sweating.....there's no discernible pattern, can just happen any time. I quite often flush as well......at 72 I don't think that it can be the menopause!!! I'm on hydroxychloroqine, MTX, arcoxia and abatacept. No idea what is the culprit, but I could well do without it!

If anyone has a remedy, I will try (almost) anything!

Nsmith13 profile image
Nsmith13 in reply tohatshepsut

Yes I’m same age terrible head sweats got a nice pink micro material head band got my hair short and it does help a bit I’m going doctors today think there is a tablet it’s just so embarrassing trying to mop up face and neck I’m on hydrxy and trying to reduce prednisone morning are worse will let you know if I have any success

nellysgran profile image
nellysgran in reply toNsmith13

Hope you can find an answer, it really is getting me down now.😥

sylvi profile image
sylvi

I have a fan next to me as I sweat from the shoulders upwards. xxxx

Tillie20 profile image
Tillie20

Hi yes I do it comes in all of a sudden when I am relaxing I also sweat a lot when I do my excerise even in the winter X

OneLove2019 profile image
OneLove2019

OMG yaaaaaaaaaaaas, I wake up with my hair stuck to the back of my neck -- I hate morning showers (prefer evenings) but I have to take them because I wake up so sticky...

OneLove2019 profile image
OneLove2019

I had the night sweats before the meds--meds do seem to make it worse though ...

I also sweat badly as well but not at night, it is during the day. It mainly comes from my head and it pours down the side of my head, down my neck and all over my face. My husband and son say that I feel all cold and clammy to touch. I am well past the menopause. I am always mopping myself up with a towel. I remember that my mum was like it too and she hadn't got RA or was taking any tablets for it although she was always in a lot of pain all over. It is so embarrassing when I am out as I look as if I have just come out of the shower and not dried myself. I mentioned it to my GP once and also to the rheumatologist but they both just seemed to pass it off.

Denboms profile image
Denboms in reply to

Hi I've never posted anything before but your reply rings so true with me. As soon as I exert myself in any small way I start to pour out of top of my head and the sweat cascades down my face. Once it wears off I am left with a bursting headache. I have RA and fibro. They have taken me off of MTX as my liver not good and at the moment kept me on 10mg steroids. But in a lot of pain. Seeing rheumatologist tomorrow. Let's see if they have any answers 🤞

nellysgran profile image
nellysgran in reply toDenboms

Hope you can get some answers.

in reply toDenboms

Hi Denboms, thank you for your reply. If your rheumatologist has any answers for you please do let me know what they are. You sound so like me, except that I don't end up with a headache although I do get a lot of migraines. I have R.A. fibro, OA and possible PsA as well as degenerative disc disease, gout, and many other problems. Life is difficult and what has made it worse for me is that I had two bad falls over a year ago and ruptured two tendons in each of my shoulders. My left arm is terribly painful and I can no longer lift it. I am now waiting for a full shoulder replacement but have to lose some weight first. I was told to lose 24lbs back on May 10th and it felt like an impossible task when I am on steroids, have an underactive thyroid gland and can't exercise, but I was determined to do it as I feel I can't cope with the pain any more. I am pleased to say that I only have 3lbs to go now. Next year I will have to have my knee replaced so will need to keep the weight off. I hope you get some answers to your problem Denboms and it is nice to speak to you. xx

nellysgran profile image
nellysgran in reply to

Well done with your weight loss 😀 i dont see my rheumy yet but i will let you know as soon as i can, because i am fed up with being dripping all the time.

in reply tonellysgran

Good luck when you see her Nelly.

SnooW profile image
SnooW in reply to

Wow, I thought I had written your post! It's exactly the same here - my mum was the same too. I am almost 64, and have had head sweats for years, even before RA and meds. No idea what causes it but it runs off me like I've been in the shower. Makes me so bad tempered and waste of time putting on makeup or styling my hair which I now keep short but the sweat still runs out of my scalp and through my hair. I think the condition may be called 'hyperhydrosis' and I am sure I read there is a medication you can take but I didn't fancy the side effects when I read up on it, and thought I would just stick with the sweating! It doesn't happen in winter, only when it is hot and humid in the summer. I just stay indoors as much as poss and do as little as poss too, or I just drip! It's a miserable and embarrassing condition.

Pulfs profile image
Pulfs

Seems that a lot of us have this problem, I include myself in this. Even wearing loose linen or cotton tops my back and neck gets sweaty even tho I may not be exerting myself,it's like my internal body temperature is set at hot 😳🌡

dbestdeb profile image
dbestdeb

Yes, I sweat buckets. It started just after I began Simponi but my dr said she’s never heard of that side effect and wasn’t concerned.

beeckey profile image
beeckey

I am soaking wet so much that it runs down my face and stings my eyes. I also have fans in bedroom and living room no one else in the house feels it but it is so draining

nellysgran profile image
nellysgran in reply tobeeckey

That is what happens to me, today while shopping i had to stop and buy another tshirt as mine was sopping wet with sweat and my hair was wet and as you say when it gets in your eyes it really stings......its so terrible all the time !!

Hobbledehoy profile image
Hobbledehoy

Check out your meds with Rheumatologist. Good luck.

RAreyna profile image
RAreyna

I recently had a flare and my rheum doc put me on a four week taper of Prednisone, starting at 20 mg/day. I've had *terrible* sweats! She also upped my mtx to 20mg, once a week

RichardG profile image
RichardG

I have woken up sweating for years now and only after starting mtx and humiria. Every time I wake up during the night or in the morning. Had tests for other things the GP thought might be causing it but all negative. Only suggestion was to stop RA meds and see if it goes away but I am not willing to try this. Definitely NOT menopause as I am male. Very annoying!

Nanabrodie profile image
Nanabrodie

I do, especially during the night. I wake several times wet through ! Very rarely sleep right through these days. I’m on MTX and Hydro. I thought it was just me. Definitely not menopause I’m 68!

WmW82 profile image
WmW82

Hi nellysgran, I'm always dripping with sweat it's like having a bucket of water tipped over your head every two minutes and the night sweats are just as bad my rhumy seems to think it could be the prednisone I'm taking

Cach profile image
Cach

Oh my days. I'm so glad it's not just me! My head just suddenly gets hot and sweat pours from it. My hair is short and fine and sticks to my head. It's horrid!

SnooW profile image
SnooW in reply toCach

Exactly the same here. I sympathise with you over it. :(

Mmrr profile image
Mmrr in reply toCach

..and me, fine one minute head sweating the next..

nellysgran profile image
nellysgran

Wow, i thought i was the only one........ but after all your comments it seems that it is a very common complaint... thank you all for replying.... if anyone of you poor dripping souls have an answer we would be very glad to hear more..... thank you all again from your drippy friend...😓😓

Paulajolo profile image
Paulajolo

As Whaleroad says vitamin D helps. Also decaf tea not coffee . Try to Avoid sugary foods too.

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