Thank you: I was diagnosed with RA in May 2018 and was... - NRAS

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Thank you

JoolesJB profile image
9 Replies

I was diagnosed with RA in May 2018 and was completely floored by the thought of a disease for life. Of course I did the wrong thing and searched everything I could find on line and was even more depressed by what I read and the overwhelmingly negative and frightening comments particularly about meds. I could have so easily be put off from taking them. I was also amazed by the number of people who told me not to take them and that I would be fine if I changed my diet, took this supplement or some other. I decided to trust my rheumatologist take meds (methotrexate and Hydroxy) and only access trusted online articles. I found very few chat rooms that didn’t leave me depressed ( including Versus Arthritis). Finding Health Unlocked has been amazing. So informative, positive responses - even with difficult topics. I am so happy to have found you and so just want I say thank you. 😀

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JoolesJB profile image
JoolesJB
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9 Replies
Campaigner profile image
Campaigner

I absolutely agree with your comment. That is exactly what I felt when I found this wonderful site.

Ruth12345 profile image
Ruth12345

I agree 🙂

rab1874 profile image
rab1874

Agree totally Jooles, this forum helps us understand and come to terms with this disease and are among friends who understand what we are all going through on a daily basis xxx

medway-lady profile image
medway-lady

Common sense really and RA is not a death sentance just another blip in the course of life. It is a fact of modern life that Dr Google is frightening, hilarious and truly disturbing so much humour is needed along with a good dose of sceptism along with the medications. lol xx

beeckey profile image
beeckey

I agree just to talk to people with the same things going on as you have makes you feel you are not on your own x

Collielover profile image
Collielover

Bless you, it must be horrendous for you but we are all individuals and your mums situation is no way going to be yours .. trust in the medical profession that we have at our disposal and plz do not spend all your time worrying about what’s next !! Enjoy your family and live your life and what will be will be !!

I have RA , type 1 diabetes, Colitis, hypothyroidism and now Oral Lichen Planus. I’m 48 with 3 children and 2 stepsons who I love very much and a fur baby who I adore .. just try ( I know it’s hard ) to relax , be calm and what ever comes next deal with it and move on ..

good luck and you’ll be fine my lovely xx

CloudTreeDrive13 profile image
CloudTreeDrive13

O dear. Big mistake. I looked online at a T K R. Thought I was looking at a Ferrari rotating on a stand in a showroom !!! Lol. Be aware but keep in perspective and rely on your gut feeling. You learn to live and adapt along the way. Speaking from one who has had it for 32 years now. I wish you well. Have a good day. Take care xxxx

JoolesJB profile image
JoolesJB

Thank you everyone who’s responded it’s good to know there are people out there who can understand how you feel 😀

Hezekiah profile image
Hezekiah

Hi joolsJB, just wanted to say I liked your words about Versus Arthritis site. I went on it briefly recently, and was not impressed . Found the layout difficult to navigate, and the threads felt sort of incomplete, and patchy.

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