So I have been to see my new rheumy, starting all over again. Asked lots of questions and said he may try me on biosimilar of enbrel. Not sure how this will go as enbrel just stopped working after about a year.
He asked why my diagnosis was changed to PsA and I told him the hisotry of being told if I tried that diagnosis that I could go back to sero neg RA, even though I have never had psoraisis and have no family history of it.
Welllllll he tells me I may have issues now getting access to any more biologics that are for RA due to this. Then to make it worse I get a call from the receptionist an hour later saying that she has my last biologic application for cosentyx from the hospital clinic and they have written on it I suffer from psoriasis and have a family history of it.
To say I was angry is an understatement. I am so furious I may just write to medicare and let them know the registrars lied through their teeth and have jeapordised my treatment now.
Anyway, had a full body bone scan and go back to see him this Thursday to get results and to see where to from here. Hopefully I will get some more info on what else the registrars have written on my forms. grrrrrr
This last 5 years seems to have been all for nothing in some ways. Add to that I now have hyperparathyroidism and keep getting kidney infections. Working full time is becoming a challenge.