So today was my rheumatology appointment which my doctor arranged because of an x-ray report. I have written before about my story but basically it is:-
RA runs in my family, I get morning stiffness with swelling of hands and feet, I feel constantly exhausted, I am in awful pain, I have swollen lymph nodes, 13 years ago I had a large swelling in my jaw which was diagnosed as TMD, I get very puffy eyes which feel dry & gritty at times, I get the feelings of flu which doesn't turn into flu just swelling and pain, my knees are swollen & give way at times,my middle toes are agony, I have a nodule on my wrist & nodules on most of my knuckles (even though these feel boney they are not). Have seen a rhuemy four times now & each time they dismiss the symptoms saying they are Fibromyalgia & osteo arthritis not RA. I do know that some of the symptoms I am getting don't fit with fibro or osteo arthritis, I thought the inflamed nodule on my wrist was most telling (so did the radiographer who said in his report that I needed to be treated by a rheumatologist).
Rheumatologist called me in for my appointment he looked at me and asked why I was there and I said I was referred because an x-ray on my wrist showed a nodule which looked like RA. Well what came next was unbelievable he pompossly told me that this is the third time he has looked at me & told me that you have fibro & osteo. This was before he did anything. I asked why would the radiographer think it was RA and he said "oh he can't diagnose you". He then took me to another room asking my friend who was with me to stay where she was as the room was a bit small. Anyway when I was in the room with him & his nurse he went over my hands with an ultrsound wand squeezed my feet & hands which hurt so much so that I ended up crying. Whilst in the room I did say to him "I didn't ask to be referred back to you, I thought I was going to see a hand surgeon who would be able to fix my wrist with an op". He got slightly politer after that. He said my x-rays show no deteriation between the joints.He showed me an x-ray of my hand in which the bones did look perfect but I have several nodules on my knuckles which don't show up on the x-ray, what I would like to know is what are these? is this osteo? I thought osteo showed up on x-ray. Maybe I should put that in questions.I also took photos of my ankles when they looked like tree trunks, attached to message, (sorry it's bit grim) he made no comment. He said he would look into upping my pain medication and that I should make sure I rest when I need to. Other than that goodbye. Hope everyone else is having a good day, or as good as possible.