PIP face to face done today: Well went for my face to... - NRAS

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PIP face to face done today

Pulfs
Pulfs
35 Replies

Well went for my face to face this afternoon, had a very nice lady that understood my condition of RA . Didn't push too hard with the physical part of assessment and understood the problems I have for every day living and what my husband does for me and wrote down all I told her.

Just have to wait now for the decision hopefully it's favourable as my mobility car depends on the outcome 🤔

35 Replies
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Ajay575

Hope you get the right decision and glad you seemed to get a good assessor for a change .hopefully everything will be ok

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Pulfs
Pulfs
in reply to Ajay575

Thanks x

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popsmith1874

Hope everything goes well xxx

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Pulfs
Pulfs
in reply to popsmith1874

Thanks have fingers crossed x

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nomoreheels

Thank you for letting us know & so pleased you had an assessor with some idea of RD. Now the wait begins, I hope it's just a matter of swapping benefits & you receive enhanced mobility in order to keep your car. It'll be 2 weeks on Tuesday for me & gone through the assessment again in my head & still not sure about it. Why do we torture ourselves?!

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Pulfs
Pulfs
in reply to nomoreheels

Be thinking of you and let's hope we both get a good outcome try not to worry xx

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nomoreheels
nomoreheels
in reply to Pulfs

I think it's that she wasn't English & whilst she had good command of the language I'd to ask her to repeat herself a few times. Just hope she understood what I meant on some things, she typed enough!

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Pulfs
Pulfs
in reply to nomoreheels

Mine also was not English think she was German with medical background and typed very quickly x

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nomoreheels
nomoreheels
in reply to Pulfs

Not sure but I think mine was Romanian, not good at determining accents from that part of the world. She was a Physiotherapist. I'm in Lancashire, the Fylde Coast.

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Pulfs
Pulfs
in reply to nomoreheels

Do you get RA care where you are? Can't complain about mine down here well looked after x

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nomoreheels
nomoreheels
in reply to Pulfs

I'm seen alternately by my Rheumy & her Specialist Registrar who is excellent. I've told my Rheumy so, she agrees & said she's trying her best to keep hold of her. I have Nurse Specialist appointments at 3 months, not so fond of her so I only see her if I've need to.

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Pulfs
Pulfs
in reply to nomoreheels

I see RA specialist nurse every 6mths before my biological infusions of retuximab which is now a biosimily. GP refers me for scans and to the orthopaedic consultants. Joints behaving at mo but have lymphoma around both knees and still get very fatigued x

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Pulfs
Pulfs
in reply to nomoreheels

Just wondering what part if the country you are I'm in Berkshire x

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Hidden
Hidden
in reply to nomoreheels

.....Because it's bloody stressful and feels like your being judged? On top of having a chronic disease, you have to justify/explain it. Just been thru similar myself, got talked into taking last minute appt on phone, hour's notice, instead of planned one with lift and support with me and feel i did wrong thing now, been ruminating on that since (which i know is pointless exercise having attended cbt lol!) They'd had load of cancellations due to nice weather according to them, who knows. Oh dear chin up everyone, whatever will be will be eh? 😊

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nomoreheels
nomoreheels
in reply to Hidden

Agree on all points Keren. Is my memory failing me or have you posted about it & I've not happened upon it? Seems all too hurried to me, I do hope you receive whatever helps. As you say whatever will be will be.

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Hidden
Hidden
in reply to nomoreheels

No i havent nmh, wasn't supposed to be for another week, esa but they re all the same, just stressed in private. Hope yours is ok, good luck x

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marie66
marie66
in reply to Hidden

((hugs)) I replayed it all in my head too. In the end I had to let it go...there was a hitch the decision maker wanted more information and it took 5 months to get a decision! Thankfully a positive one! M x

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Hidden
Hidden
in reply to marie66

5 months! Poor you Marie, that's awful x

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Jewels94

Glad you got a good assessor. Hope you get the right decision. Mine was supposed to be yesterday but got cancelled on Thursday afternoon. Been changed to 3rd May now

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Pulfs
Pulfs
in reply to Jewels94

Oh dear try not to worry over it mine was ok . Once the form is filled in and sent not much you can do. Hope it goes well for you x

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Ruth12345

Its a challenging process to go through. All the best to both of you.

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Pulfs
Pulfs
in reply to Ruth12345

Thanks x

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Magymay

I received 6 points at my pip appeal and my WRO said they broke the law giving me no points for the mobility part as I'm prone to falls ,i have ankles like elephants feet a knee like a cauliflower and bursitis in my hip ,costochondritis that gives me constant pain and they're making out I'm fit for work ,apart from get one of them to live with me for a few days ,I'm at a loss as to how to get them to see my situation ,.Think it's down to lying through your teeth to get it and that is not me I'm afraid ,so we'll see how the higher appeal goes ,I don't have to attend this one so that's good .My universal credit or ESA appeal is on Tuesday,not looking forward to that as they try to truck you into saying the wrong things and they take everything you say out of context but I'm ready for it ,fingers crossed ☺hope you get a good result 😀

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Pulfs
Pulfs
in reply to Magymay

Poor you hope you get a good result this time 🤗

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ladydog

Hope everything goes OK had mine last Tuesday just awaiting decision. She told me would be 4 weeks. X

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nomoreheels
nomoreheels
in reply to ladydog

How did it go ladydog?

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ladydog
ladydog
in reply to nomoreheels

Went OK but you cannot tell. Was different than first. Way she asked questions . Realised when come out they was things I didn't mention. Will just have to wait and see. Awaiting decision. X

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Joya_banerjee1

Good luck Pulfs. Half the battle one if you can trust his guidance

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kt11

All the best xx

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Neverending63

This PIP is so stressful. I decided to appeal mine and got a copy of the assessment, boy was I fooled by what I thought was a competent assessor. Seems whilst she spent so much time typing hadn’t listened to what I actually said. Got a lot of the distances wrong hence why I got standard rate for mobility. I am now waiting to hear about the mandatory reconciliation. Hope yours goes better than I thought mine had. Good luck.

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Magymay

Don't forget peeps if you have to appeal and that doesn't go in your favour you can apply for a higher appeal Mean if you've came this far it's worth it 😏it's just one big waiting game which is stressful and in turn can effect your illness ,they don't seem to even consider this but I'm afraid we haven't got an option so onwards and upwards,Just wondering if anyone has costochondritis how long can it last ,I've had it since October and it's constantly painful ,any advice would be appreciated 😉thanks x

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annie0261

Good luck.

Had my face to face recently - with a Paramedic who did PIP assessments on the side lol. Seemed a really nice understanding chap however, its the DWP who make the awards and this is base on what you sent them, and what they read from the F2F report....They dropped me points but I've appealed - if you have to appeal, I was advised to write a letter as opposed to doing it over the phone. I'm sure you will be fine

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Fighting4me_17

Hope it goes well I am awaiting my reassessment due to mobility getting worse been stuck upstairs in our house since last Wednesday as scared I will get down on bum but then realise can't get back upstairs for toilet bed meds :( really getting me down this flare up as its worst it's ever been .

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Pulfs

Poor you must feel like your a prisoner in your own home. Hope reassessment is successful and you get help with your flare. Take care x

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nomoreheels

Can you not contact your Rheumy nurses, maybe a steroid injection is needed, help until the flare passes. Hate to think of you being so scared to leave your upstairs.

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