Well went for my face to face this afternoon, had a very nice lady that understood my condition of RA . Didn't push too hard with the physical part of assessment and understood the problems I have for every day living and what my husband does for me and wrote down all I told her.
Just have to wait now for the decision hopefully it's favourable as my mobility car depends on the outcome 🤔
Thanks x
Hope everything goes well xxx
Thanks have fingers crossed x
Thank you for letting us know & so pleased you had an assessor with some idea of RD. Now the wait begins, I hope it's just a matter of swapping benefits & you receive enhanced mobility in order to keep your car. It'll be 2 weeks on Tuesday for me & gone through the assessment again in my head & still not sure about it. Why do we torture ourselves?!
Be thinking of you and let's hope we both get a good outcome try not to worry xx
I think it's that she wasn't English & whilst she had good command of the language I'd to ask her to repeat herself a few times. Just hope she understood what I meant on some things, she typed enough!
Mine also was not English think she was German with medical background and typed very quickly x
Not sure but I think mine was Romanian, not good at determining accents from that part of the world. She was a Physiotherapist. I'm in Lancashire, the Fylde Coast.
Do you get RA care where you are? Can't complain about mine down here well looked after x
I'm seen alternately by my Rheumy & her Specialist Registrar who is excellent. I've told my Rheumy so, she agrees & said she's trying her best to keep hold of her. I have Nurse Specialist appointments at 3 months, not so fond of her so I only see her if I've need to.
I see RA specialist nurse every 6mths before my biological infusions of retuximab which is now a biosimily. GP refers me for scans and to the orthopaedic consultants. Joints behaving at mo but have lymphoma around both knees and still get very fatigued x
Just wondering what part if the country you are I'm in Berkshire x
.....Because it's bloody stressful and feels like your being judged? On top of having a chronic disease, you have to justify/explain it. Just been thru similar myself, got talked into taking last minute appt on phone, hour's notice, instead of planned one with lift and support with me and feel i did wrong thing now, been ruminating on that since (which i know is pointless exercise having attended cbt lol!) They'd had load of cancellations due to nice weather according to them, who knows. Oh dear chin up everyone, whatever will be will be eh? 😊
Agree on all points Keren. Is my memory failing me or have you posted about it & I've not happened upon it? Seems all too hurried to me, I do hope you receive whatever helps. As you say whatever will be will be.
No i havent nmh, wasn't supposed to be for another week, esa but they re all the same, just stressed in private. Hope yours is ok, good luck x
Glad you got a good assessor. Hope you get the right decision. Mine was supposed to be yesterday but got cancelled on Thursday afternoon. Been changed to 3rd May now
Its a challenging process to go through. All the best to both of you.
I received 6 points at my pip appeal and my WRO said they broke the law giving me no points for the mobility part as I'm prone to falls ,i have ankles like elephants feet a knee like a cauliflower and bursitis in my hip ,costochondritis that gives me constant pain and they're making out I'm fit for work ,apart from get one of them to live with me for a few days ,I'm at a loss as to how to get them to see my situation ,.Think it's down to lying through your teeth to get it and that is not me I'm afraid ,so we'll see how the higher appeal goes ,I don't have to attend this one so that's good .My universal credit or ESA appeal is on Tuesday,not looking forward to that as they try to truck you into saying the wrong things and they take everything you say out of context but I'm ready for it ,fingers crossed ☺hope you get a good result 😀
Hope everything goes OK had mine last Tuesday just awaiting decision. She told me would be 4 weeks. X
How did it go ladydog?
Went OK but you cannot tell. Was different than first. Way she asked questions . Realised when come out they was things I didn't mention. Will just have to wait and see. Awaiting decision. X
Good luck Pulfs. Half the battle one if you can trust his guidance
All the best xx
This PIP is so stressful. I decided to appeal mine and got a copy of the assessment, boy was I fooled by what I thought was a competent assessor. Seems whilst she spent so much time typing hadn’t listened to what I actually said. Got a lot of the distances wrong hence why I got standard rate for mobility. I am now waiting to hear about the mandatory reconciliation. Hope yours goes better than I thought mine had. Good luck.
Don't forget peeps if you have to appeal and that doesn't go in your favour you can apply for a higher appeal Mean if you've came this far it's worth it 😏it's just one big waiting game which is stressful and in turn can effect your illness ,they don't seem to even consider this but I'm afraid we haven't got an option so onwards and upwards,Just wondering if anyone has costochondritis how long can it last ,I've had it since October and it's constantly painful ,any advice would be appreciated 😉thanks x
Good luck.
Had my face to face recently - with a Paramedic who did PIP assessments on the side lol. Seemed a really nice understanding chap however, its the DWP who make the awards and this is base on what you sent them, and what they read from the F2F report....They dropped me points but I've appealed - if you have to appeal, I was advised to write a letter as opposed to doing it over the phone. I'm sure you will be fine
Hope it goes well I am awaiting my reassessment due to mobility getting worse been stuck upstairs in our house since last Wednesday as scared I will get down on bum but then realise can't get back upstairs for toilet bed meds 
really getting me down this flare up as its worst it's ever been .
Poor you must feel like your a prisoner in your own home. Hope reassessment is successful and you get help with your flare. Take care x
Can you not contact your Rheumy nurses, maybe a steroid injection is needed, help until the flare passes. Hate to think of you being so scared to leave your upstairs.
Red face after Enbrel
PIP assessment done!!
First opportunity to really chat face to face with someone else suffering with ra.
Prednisolone moon face
PIP Assessment phobia
