Always mindful that I describe myself as having mild RA I spotted this while searching for brief explanations to give friends tonight if I seem well and able - which it looks like i might do (here's hoping). I think that one couple might start asking if I'm cured of my arthritis so wanted to know what to say about the systemic part that makes us feel so tired. Mind you I really don't want to say more than is absolutely necessary about RA tonight but will wear my splints as wrists are twanging in a familiar way and need support for clearing dishes etc.
And so I came across this RA Warrior blog from 2010. I thought how relevant it is to me just now. A friend told me I should put a sign up on my wall saying "I have RA" for myself so I might actually stop giving myself such a hard time. This got through. Today my hands and feet are aching and my usual two fingers are swollen and bruised looking and my right wrist is sore but I know I can still write, chop veg, clean two bathrooms and drag the hoover about so the MTX must be working.
But I still feel low and exhausted and even a walk down into my hometown this morning to buy a few additional prezzies for the birthday boy and some friend's silver wedding party tomorrow (yippee this gets me out of baking a birthday cake!) - followed by a quick circumnavigation of friend's exhibition I'm to review has totally wiped the floor with me. Came home downed a fish cake OH had cooked and went to bed. Am just surfacing feeling more ready to make the prawn korma that I have planned and lay the table, dress up and be welcoming.
Some of the comments made re the blog about RAers being kind to each other and not judging each other made me feel so proud to be a member of this forum. Although many of course are so much worse off than me - I still feel welcome and not judged somehow? It's so nice to have a place to come where I can say to myself "I have RA and look it's taking me somewhere good where people are kind and supportive and sometimes very funny too" - like a really good club room I can sneak off to in between daily chores etc.
Thought for the day over.. must get some more cooking done. TTx
Ps photo was taken about 10 days ago on a bonnie day here when I kept receiving photos from my two sisters of Surrey and North London (where they both live) under snow so I felt I had to send one back with a bit of a gloat! Now the opposite applies only ours is not picturesque it's big white flakes blowing sideways in gale force winds - yium!