Calling all Rheumatoid arthritis warriors : Hiiiii I... - NRAS

NRAS
26,883 members30,821 posts

Calling all Rheumatoid arthritis warriors

DMARDSandMe
DMARDSandMe
38 Replies

Hiiiii

I am a student with RA and hope to start a project where I have quotes from others with rheumatoid arthritis about their struggles and would really appreciate some quotes!!!

This is so I can post them anonymously on the instagram account @fightrheumatoidarthritis as I was hoping to raise awareness about RA using quotes from people who have it.

Cheers

38 Replies
oldestnewest
Sunflower1977

No matter how hard your day is there is always someone somewhere that feels worse then you !!!!🤨

6 likes
Reply
Titch55

A positive attitude makes life so much easier!

7 likes
Reply
MajesticMo

It's like a bad penny, it turns up when you least expect it causing chaos in your body.x

8 likes
Reply
rawillbebeaten

On Day One I said "It will never beat me" and that is still my mantre.

It has battered me in ways I could (luckily) never have enviaged, but it has not and WILL not Beat Me, EVER

7 likes
Reply
Matilda_1922

It’s every 4 weeks

4 likes
Reply
28maggie11

The Lion of arthritis

3 likes
Reply
J1707

Sense of humour can get you through your worst days.

You know your body don’t let people ignore you when things aren’t right. Sometimes you have to fight to be heard.

Your not on your own so many people can help.

6 likes
Reply
Hattie23

a great positive is I have met some wonderful people through RA I would never have met otherwise. medical and sufferers.

5 likes
Reply
Cwendyn

My life is different, but my life is still great!

Since diagnosis, I've learned to be more compassionate - it's taught me a lot

6 likes
Reply
stbernhard

At the start it is devastating, painful, demoralising, frustrating and worse. Then you get treatment and you learn to live with RA. You learn that you have no choice, but to accept it and manage it. This process makes you stronger in many ways. I would have preferred not to have RA, but I am OK with it.

5 likes
Reply
medway-lady

Give me the grace to accept what I cannot change and the detemination to continue to grow old discracefully in high heels.

7 likes
Reply
Nocciola

I am a mom, a lawyer, and an active, fit, enthusiastic world traveler. Yes, I have a rheumatoid arthritis diagnosis, but it does not define me.

7 likes
Reply
Joy_1

No longer struggling - thank goodness for science!

5 likes
Reply
poemsgalore1

RD or RA

whichever you say,

it won't go away!

6 likes
Reply
SufferingOnHumira

“ I know you love me, and I love you too......but I wish that you would feel my pain, if just for a minute......so you would understand”.

6 likes
Reply
Mmrr

RD is not a battle and I am not a warrior.

7 likes
Reply
DMARDSandMe
DMARDSandMe
in reply to Mmrr

Sorry i didn't meant to cause any harm! I just wanted ti recognise how strong everyone is but may have come across wrong

3 likes
Reply
Mmrr
Mmrr
in reply to DMARDSandMe

Not at all, but I don't see myself as a warrior and I'm certainly not in a battle/ struggle. That would waste far too much of my limited energy.

I'm mainly accepting of my RD, whilst it doesn't define me , it's part of my life. Acceptance is much more positive than struggling, it allows me work within boundaries that keep me as well as I can be and maximise the good days. Struggling against something I have no control over is a loosing game, in my view.

3 likes
Reply
Artfanatic

Hi I've had RA for 31years now, got it aged 34. What sort of quote do you want/need? I was told originally I'd be in a wheelchair in 2years...but I'm still walking unaided! You need to talk about it & you need people to listen & understand what you can & can't do. But don't give up trying! You also need to still consider yourself 'normal' & try to live a normal life, just with some 'modifications & allowances or adjustments. Everybody has health issues at some time in their lives on & off..RA sufferers just have to learn to live with theirs all the time.

3 likes
Reply
Gnarli

I am more than just my illness

7 likes
Reply
DMARDSandMe

This is why I asked for quotes, do keep sending them in and feel free to follow this new page. instagram.com/p/BysdL26BDSm...

1 like
Reply
Paisley58

R.A loves to show up like a bad smell when your entertaining, it's at these times I employ gallows humour, it has got me through many dark times

Reply
nomoreheels

Along the same lines as Mmrr... I may have been made to endure RD but I am not a sufferer.

1 like
Reply
DMARDSandMe

Im sorry i meant no offense! Just appreciating how everyone has coped well with what can be a very challenging condition

1 like
Reply
nomoreheels

No, you misunderstand me (& Mmrr, we have a similar attitude to the disease). I wasn't, & am sure she wasn't, being flippant. I cope with RD, I have to, but I refuse to allow it to label me a sufferer, I just won't let it define me. You must know/feel that way having RD yourself? I hope you do anyway. I was nailed on to have it so maybe it makes me more accepting it's going nowhere. Also being diagnosed promptly I had a few weeks to think it over & come to terms with it when I met my Consultant for the first time. I just wish I'd had my Nan around to appreciate what she'd gone through, much more pain & destruction than me unfortunately. We may not have a cure just yet but at least we have meds which for many work well at safeguarding our joints. Glass half full possibly but I prefer being like that to being a "why me?", I don't believe that helps, for me anyhow. Again, I agree with Mmrr, there's no point wasting the energy I do have on something that I didn't ask to be dealt. 😌

3 likes
Reply
Damaged

RD is the great equalizer. It can affect you no matter how young, rich, educated...you are not alone but always unique! It is great to get help and advice but it affects everyone in unique ways. Trust your instincts and find a doctor who works with you.

Remember that there will be good days and bad. The key is to know your body and what works for you. Do not forget that there are areas you control, diet activity and attitude will get you through most adversity. A great sense of humour will become your best defence.

2 likes
Reply
Mcdebz

Breath in.....Breath out... repeat.

3 likes
Reply
Bully915

mine would be easy

I'd rather face a firing squad than have this horrible disease

1 like
Reply
crashdoll

My favourite saying is not just about RA but all things that are difficult; “it is what it is.”

2 likes
Reply
Izzy274

I can still do what I want do, but I don't want to do as much as I used to!!

4 likes
Reply
mistymeana

RA is something I have to accommodate but it doesn't define me. I am so much more than my disease..

3 likes
Reply
Sheepish

Learn to accept change and be grateful for the small things.

2 likes
Reply
Titch55

I go to see Consultant feeling really good and announce that I am doing really well. He examines my joints and says I think you need a steroid injection. Am I feeling downhearted? No, because it makes me realise that I am much stronger and cope better than I realised.

1 like
Reply
charisma

We need testing for mycoplasma which are implicated in many chronic diseases including RA.

I am disgusted and feel utterly mistreated by NHS and pharmaceutical companies, gov dept of health etc since all that is done for sufferers is to treat symptoms with highly toxic drugs that never cure, meantime doing zero to address the cause.

Mycoplasma science, experimentation and identification has been ongoing since at least 1942.

We need real research to eradicate RA, not dangerous drugs that perpetuate illness.

patents.google.com/patent/U...

livestrong.com/article/1647...

ncbi.nlm.nih.gov/pmc/articl...

Reply
Deeb2908

One day I can take on the World the next a beached seal flapping around but not able to move with any form of grace. However humour and gritted determination are the KEY!

2 likes
Reply
DMARDSandMe

I love this attitude. Stay determined!

2 likes
Reply
MagicalMarjieXx

We are all lifes warriors and strive to get through each day living with our own unique personal battles It can be a lonely journey but we are not alone thanks to sites like this where we can support eachother 😔🌟

1 like
Reply
Shamrockgirl

Found it hard to accept having this, on top of other long term health conditions, but you have to grit your teeth & adapt. I never thought I would give myself injections (I’m so squeamish) but soon had to do 2 different ones, once a week.

1 like
Reply

You may also like...