I am a student with RA and hope to start a project where I have quotes from others with rheumatoid arthritis about their struggles and would really appreciate some quotes!!!
This is so I can post them anonymously on the instagram account @fightrheumatoidarthritis as I was hoping to raise awareness about RA using quotes from people who have it.
Cheers
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DMARDSandMe
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At the start it is devastating, painful, demoralising, frustrating and worse. Then you get treatment and you learn to live with RA. You learn that you have no choice, but to accept it and manage it. This process makes you stronger in many ways. I would have preferred not to have RA, but I am OK with it.
Not at all, but I don't see myself as a warrior and I'm certainly not in a battle/ struggle. That would waste far too much of my limited energy.
I'm mainly accepting of my RD, whilst it doesn't define me , it's part of my life. Acceptance is much more positive than struggling, it allows me work within boundaries that keep me as well as I can be and maximise the good days. Struggling against something I have no control over is a loosing game, in my view.
Hi I've had RA for 31years now, got it aged 34. What sort of quote do you want/need? I was told originally I'd be in a wheelchair in 2years...but I'm still walking unaided! You need to talk about it & you need people to listen & understand what you can & can't do. But don't give up trying! You also need to still consider yourself 'normal' & try to live a normal life, just with some 'modifications & allowances or adjustments. Everybody has health issues at some time in their lives on & off..RA sufferers just have to learn to live with theirs all the time.
No, you misunderstand me (& Mmrr, we have a similar attitude to the disease). I wasn't, & am sure she wasn't, being flippant. I cope with RD, I have to, but I refuse to allow it to label me a sufferer, I just won't let it define me. You must know/feel that way having RD yourself? I hope you do anyway. I was nailed on to have it so maybe it makes me more accepting it's going nowhere. Also being diagnosed promptly I had a few weeks to think it over & come to terms with it when I met my Consultant for the first time. I just wish I'd had my Nan around to appreciate what she'd gone through, much more pain & destruction than me unfortunately. We may not have a cure just yet but at least we have meds which for many work well at safeguarding our joints. Glass half full possibly but I prefer being like that to being a "why me?", I don't believe that helps, for me anyhow. Again, I agree with Mmrr, there's no point wasting the energy I do have on something that I didn't ask to be dealt. 😌
RD is the great equalizer. It can affect you no matter how young, rich, educated...you are not alone but always unique! It is great to get help and advice but it affects everyone in unique ways. Trust your instincts and find a doctor who works with you.
Remember that there will be good days and bad. The key is to know your body and what works for you. Do not forget that there are areas you control, diet activity and attitude will get you through most adversity. A great sense of humour will become your best defence.
I go to see Consultant feeling really good and announce that I am doing really well. He examines my joints and says I think you need a steroid injection. Am I feeling downhearted? No, because it makes me realise that I am much stronger and cope better than I realised.
We need testing for mycoplasma which are implicated in many chronic diseases including RA.
I am disgusted and feel utterly mistreated by NHS and pharmaceutical companies, gov dept of health etc since all that is done for sufferers is to treat symptoms with highly toxic drugs that never cure, meantime doing zero to address the cause.
Mycoplasma science, experimentation and identification has been ongoing since at least 1942.
We need real research to eradicate RA, not dangerous drugs that perpetuate illness.
One day I can take on the World the next a beached seal flapping around but not able to move with any form of grace. However humour and gritted determination are the KEY!
We are all lifes warriors and strive to get through each day living with our own unique personal battles It can be a lonely journey but we are not alone thanks to sites like this where we can support eachother 😔🌟
Found it hard to accept having this, on top of other long term health conditions, but you have to grit your teeth & adapt. I never thought I would give myself injections (I’m so squeamish) but soon had to do 2 different ones, once a week.
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