I saw my rheumatologist on Friday. I've now failed 3 DMARD s ( Sulfasalazine, Hydroxychloroquine , and MTX although technically that failed me as it's causing a real problem with hair loss)! The rheumatologist has two suggestions, I can try Humira or I can stop taking everything apart from pain relief and know that I will always have some pain. The second choice fills me with despair. I've been in pain for half of my life (severe pain for much of that time). He said that the spondylitis doesn't usually cause terrible joint deformity so this is a viable option. I don't really know how he can say this as he has never actually even looked at my joints and I've never had scans or X-rays of any joints except my feet and I don't think that he's even looked at them as they were done abroad. Everything has been done on bloodtests. I told him that the thought of continuing in pain is really depressing as I have problems with many pain medications and can't take them so I know what my life will become. I can't face that, I've been there, done that, no thank you! So that leaves Humira and all the side effects, risks that may entail. I've been reading up on it and it may/may not help with my inflammatory bowel disease, so that's another question. So will need close supervision from gastroenterologist. I'm not asking for advice, just want to know your thoughts as I'm in a quandary. I thought I was okay and had decided that I would try Humira but today I just feel a bit tearful and in two minds. How stupid is that? Does anyone know what the criteria is for anti TNF and spondy? Sorry to be such a misery but although my husband is brilliant sometimes he isn't as sympathetic as he could be. He seems to think that everything should be black and white and that I shouldn't dither and should just make my mind up! Clemmie
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