I've been looking at this site frequently since I discovered it. I'm amazed by the amount of knowledge here and am hoping I can pick up some tips.
I was diagnosed with CCP Pos RA in 2013, although I had joint symptoms for about 5 years before. They diagnosed Palindromic RA, but I think I have ordinary RA too now. I'm on 15mg oral Methotrexate pw and 2g Sulpha. (I've tried Leflunomide and Hydroxych.) I also have CD, Hypothyroidism, Antiphospholipid Syndrome, Psoriasis, and have had scleritis a few times.
I used to be extremely fit and active. Now I muddle along on a low base-line (for me), with periodic massive flares, in specific joints/tendons if I do anything slightly too much. When this happens Tramadol and Oramorph barely touch the pain. I can't manage my active job, even with steroids, which I have taken periodically over the last few years to enable me to do short contracts. I'll be starting Rituximab shortly.
What I'd like to ask you about is this; since about 1996, when I first had scleritis, and they found a +RF, I've had frequent periodic bouts of extreme tiredness and flu-like symptoms, when I was utterly debilitated and simply had to take to bed. The episodes lasted for 2-3 days and then disappeared, only to reappear a few weeks later. This continued for over 10 years. I had no joint symptoms at the time and frequent visits to the GP failed to find anything.
Could this have been RA do you think? Has anyone on here had these symptoms too without joint involvement? I'm really struggling with the diagnosis and trying to come to terms with understanding what's happening to me.