Way before I was diagnosed with RD (although I had scleritis and was RA+) I would have days of great debility when I’d feel so weak and ill I’d simply have to lie in bed. My body would ache everywhere, I’d have a huge thirst, a headache, my brain would be muzzy and I’d feel so terrible I couldn’t even stand up.
When I was diagnosed with CD, they said it was that. Then hypothyroidism. Then antiphospholipid syndrome. Then RD. I’ve been diagnosed with RD for about 5 years now and am on MTX and Rituximab. But during the last few months these periods of feeling ill have all joined up and now I’m unable to anything other than lie on the sofa.
I do have a bit of a flare and there is some joint/tendon pain at various points, but nothing as bad as it has been in the past.
The main thing is I feel so debilitated and systemically ill and low. Like I am fighting a massive infection. I feel too weak to fight my way out of a paper bag.
My Rheumy said this isn’t part of RD and there must be something else wrong with me. My GP just says it’s RD.
Does any else with RD experience these symptoms of utter debility, but without massive joint pain?