Hi. I stumbled across the site when looking for answers.
I feel a bit lost at the moment.
Currently I've been having issues for about 2 years.
It started with my little fingers bending and has ended up with a swan neck deformity shape. When my left index finger began to bend down and was painful I went to the GP who referred me to the hospital.
In the 18 months or so I have had hand therapy. Seen various muscularskeletal consultants (worked my way up the levels to the top one.)
All very baffled.
Currently under RA. But had a letter and results shown don't have that so am being referred back to general out patients.
Very frustrated, I feel like they don't know what's wrong.
Have had MRI. several ultra sounds. So many blood test's.
I.e for lupus. Diabetes. RA
Currently my left index finger is bent. The tip joint.
The right hand has the swan neck little finger and the index fingers is the most painful. I daily have pain in the 2 joints of the finger and the pad. Sharp pains. Using voltrol which gives some help.
Have more splints. Support bandages and gloves than you could throw a sock at!
Reason I have been tested twice for lupus is I get a UV rash on skin.
Feeling quite Down. Wish I could get a diagnosis to help with pain.