I never would of thought that I would be spending my 1st morning of being painfree crying. My emotions are all over the place.
I jumped out of bed this morning after 4 hours of sleep....Yes I jumped out of bed. I did not flap around like a beached whale....I am still swollen, but nothing like I was just 14 hours ago. My wrists and ankles feel weak, but the vice grip feeling has gone.... I put socks on my feet for the first time in 9 months.... all by myself. I picked up the coffee pot and poured myself a cup of coffee...I think my 8 pound dog was shocked that I picked her up and cuddled her.... I keep telling myself "Baby steps Sue, Baby steps..." I want to do a cart wheel....I haven't done that since I was 12....The last thing i want to do is break my weak arms and fingers....baby steps Sue, baby steps... I'm going to take my dog for a walk in the park across the street..
I'm so pleased for you Suzanne! It gives me hope that the wretched MTX I've been on for quite some time may just work.
I too would like to have the rediscovery of actions and movement that has been increasingly difficult to achieve. I could imagine that you would want to bound over tall buildings and run everywhere.
Wow that is some news! Yes don't do cartwheels just yet! But I can feel your excitement even so far away! I hope this is the end of your pain and struggles Sue. You need some TLC at last. X
I'm so pleased for you Sue. The MTX has worked for me too. Day off work today and I'm going to the gym! I never thought I'd feel this good again in a million years. There is hope, there really is!
I can't wait to go to the gym again. My hubby bought me an elliptical for my birthday a month before I was diagnosed. So needless to say, I never got to use it. Time to dust it off.
I was on hydroxy 400 mg and sulfasalazine 35000mgs for 2 years. My rheumy didn't want me on mtx because he said I had mild RA. So I was left to suffer for 10 months and become more disabled. I left work and went on disability. I was disabled, in pain and broken inside when my husband carried me to our GP.
Our GP was mad that my snowballing symptoms were being ignored. When he saw my jaw "falling off my face" he fast tracked me to a new rheumy.
I am now on 10mg mtx, 2500 mg sulfa and 300 hydroxy. I see my new rheumy in October to adjust my mtx if needed.
Once I am stable, I will be making a formal complaint to our governing health board with the help of my MLA ( voted in government officail).
AWESOME!!!!! That is such a wonderful feeling and day! Congratulations Sue!
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