Greetings to all over the pond! I've had comments and new visit to the Rheumy, so thought I would pass on a bit of info altogether in one spot.
First, have really been dragging so far this Spring and Summer. Mostly over outdoor gardening chores. But I don't want to not do these things ! So, I know I have been pushing myself, the only Pacing I do is go lay down about 2-3 times a day, especially after feeding, watering and transplanting baby seedlings. The worst is getting the garden hose out to where I need it! Just too heavy and so difficult to pull through the yard with my 4-wheeled walker! Get that job done, and I crash on the bed, hurting so much I can't believe it.
Also have break-through spots of Psoriasis, despite taking MTX, Leflunomide and Biologic Simponi.
First thing my dear Rheumy asks is, "have you noticed more fatigue since we increased the leflunomide last time?" Uh, maybe? but the time coorelates with advance of Spring and outdoor chores.
He said Fatigue is a common side effect of leflunomide. Hmmm. Thought there may be many of you on lef. that might notice this too.
I have experience alot more pain than usual, especially getting out of bed! Yikes! Morning stiffness at its zenith! I can hardly get out to the kitchen, one foot at a time, leaning heavily on the walker. Glad nobody sees me at this hour!!
So, he asked if I'd like to try a regular daily dose of Prednisolone? I recall many of you taking it, so I agreed.
Took one last night, hoping to get out of bed easier this morning. I was wide awake till after 2am! Got up at 5:40 But I wasn't sleepy..then got out of bed, put glasses on, took hold of the walker and went out to the kitch. to make coffee. Then I realized I did that without being stiff and pain-ridden! Well, my goodness! I might like this. But, I do have to watch for increased water retention, increased appetite, and swelling of feet, ankles and fingers. We have to pay for plusses in life, don't we?
I do remember in the past, it has also increased ambition. Remember one time, laying awake till wee hours, thinking I could go paint the kitchen! I controlled that one, didn't do it!
My question to those on daily Pred....does this ambition reaction go away? How much time do I have to accomplish a few chores I have been intending to do, but had no energy to accomplish! Painting the kitchen is NOT on the list
I told him I just do not have the strength and energy I had last summer, doing all these things. He said, looks like I'm in a flare, Sed Rate 71!! Holy molly!
Then the inevitable comment, "of course, as you get older, these meds may not work as well because your body cells may not absorb as much as previously". Crap on that one too
This is getting long. I want to tell you all about some other things, so I will write again soon.
I have missed sending comments, more like I used to..just often very exhausted and hurting when I finally get to the computer, so I read yours and try to keep up, but I think I might have missed somethings. Did Sylvie and Bob return from Holiday yet? Did Allanah go with caraavan yet, or is she talking about it yet? Tilda..hope you are resolving things, just stay with the MTX! How did you get along during your concerts? Was it hard on your feet to stand that long, or did you have some extra cushiony shoes?
Got a new Mr. Coffee Coffee maker yesterday, metallic Turqoise color, to match other items of decor in my kitchen. Anyways, thought of the gal who used to work at ...omg, a senior moment, can't think of the name of highly popular coffee shop! Their coffe is stronger, so always a treat. Anyways, set the new coffee maker for "Strong" so I'm going to go have another cuppa Cheers to all! I'll be back! Maybe Prednisolone makes me even more verbal Loretxxx