Well now a few months back I was put on steroids as being sero negative there were no more Bio's that I would tolerate. NOw I was on here a few times telling everyone that I was afraid of these and really didn't want to take them. Lets face it we can hear some stories about what different meds can do to us. Anyhow, I have a brother in America who was quite ill and lived on his own so I started the steroids before going over there to look after him. If I hadn't I would of been any use to him at all now would I?
I have to say that the steroids were in fact great. They allowed me to keep going and except for the odd stab or twitch I was doing really well on them. I think I should say that I have had a mental health problem since I was in my 20's, I'm now 65 and am on a very, very effective medication for that condition. Steroids can have a negative effect on people like me...I was also very frightened of putting on lots of weight, another ongoing problem since I was young. As I have become older I have settled into a weight and eating programme that I'm happy with and didn't want to mess that up either. They were my reasons for not wanting to take the steroids but we all know that with this disease 'needs must'....
Now, the steroids were great but have been waning in the last week or so. So much to the extent that I though I had a tooth infection but it turned out to be my Rheumatiod jaw problems. I now have pain almost everywhere.....so I foned my wonderful Rheumy Nurse Bronagh and she fit me in yesterday. She said doesn' t want to keep upping steroids so she spoke to the Doc and they have decided to have a look at DMARDS again. Two they came up with are Ciclosporin and good old fashion Gold Injections.
Bronagh told me that Gold Injections are making a bit of a come back. I remember a brother-in-law getting them back in the 70's!!
Now I would love to hear from you about you experiences and/or advice concerning these two treatment forms. I did the internet thing and got more or less the same informations as I got from the two leaflets that Bronagh gave me. I would be gratefull for any comments at all........thanking you in advance and hoping that you are all as well as possible. Jean XXX