Good morning everyone. I'm experiencing some difficulties with my steroid meds. I'm only on 7.5 Prednisolone and I'm sounding off walls, my eyes pop open at 6.00 every morning and I could eat for Ireland my appetite is so vigorous. I have to say though that I am almost completely pain free, my wee bungalow has never been cleaner and the garden is in perfect order.........but.......I feel like I'm plugged into the national grid.......
I saw the lovely Bronagh on Tuesday there just past and she said that if I hadn't approached her that she would have been s Ning for me to come in anyhow to talk about weaning off the Prednisolone as I've been on it now for well over a year and in her opinion that is long enough......all sounds perfectly reasonable but my problem is that there isn't any alternative available for me that I can tolerate. Been through MTX and everything in between including 5 Bio's.
I'm m seeing my loved Rheumy Consultant Dr Armstrong soon and there are only two treatments on offer to me, one is the ancient remedy to f Gld injections and the other I don't remember, begins with a C but that all I remember.
I was just after talking to my GP on the fone there now and he said it doesn't sound great for me. I was diagnosed 6 years ago and have been on a sort of roller coaster with regards to my pain/pain relief, like most of us really. I be amazed when I hear of sufferers being given MTX and they just go back to normal or near normal life. Don't get me wrong I'm am very, very happy for them and the very best of luck to them. For me unfortunately it hasn't been so straight forward. I'm sero negative by the way.
Just thought I'd write down my thoughts as I'm not going to be in a great place if the 'gold' doesn't work. I can still remember my early first year and a half and it really was a very very dark place indeed and I don't want to go back there. Unfortunately my wishing ng isn't going to do much for blatant reality.
I told Bronagh that I was booked to go on a,cruise in September, my first holiday since being diagnosed (planned and booked while manic on steroids....I had visions of zooming down water slides!). She told me to come back to see her before I go and she would give me a steroid injection to see me through my holiday. I told her about how much I was looking forward to the water slides and she laughed and told me she would do whatever she could to get me up the steps to the slide.......god bless the NHS and my darlin Bronagh.