Went to the doctors yesterday as i wasn't sleeping due the pain in my neck. I couldn't get in so i rang my nominated phone number and spoke to my nurse and she checked and told me there was a cancelation and i took it. I saw my dedicated dr. and she was lovely she felt my neck and she said i can take my naproxen for a few days while the neck settles down(hopefully) and she gave me a few days sleeping tablets. My neck has degeneration in it so there is not a lot that can be done,just rub the cream in and take the tablets.
Yesterday afternoon i was at the hospital for a balance test due to my ears going off and being sick. The lady doing the test was really lovely. The result of the test is i have meneires as well to add to the mix. It wasn't what i wanted to hear,but i wasn't surprised as it had already been mentioned to me. I don't know how i feel about it all. My health is going downhill fast. I can hardly do anything now. I don't know how i feel about my health now, i mustn't allow myself to get depressed about it all, which i can all so easy get into. I am always in pain somewhere on my body. Some days i don't know how i get through the day. Thank goodness i am not suicidal or i would have done something by now. I fully understand how people do commit suicide. Thank goodness i have hubby looking after me otherwise things would look a lot different.
So i am still alive and looking forward to what my family are going to do for my sixtieth birthday in August. I hope they do a surprise party as i don't like being in the limelight. I have my photographry and my colouring in books to keep me busy so no reason to get depressed,also i have you lovely people here to give me a kick in the butt if i get down and i know you will cheer me up as well,most of you i will never met,but i consider you my friends as you all know what i am talking about because you all feel the same.
Hugs to you all.xxx
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sylvi
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Sylvie, you poor thing, yet another thing confirmed you've to contend with. My m-i-l had Meniere's & she coped with it remarkably well considering she had Parkinson's. Thankfully it was in the early years before demtia so she would take her meds & each morning do her exercises. What seemed to help her was a tip from her Parkinson's Specialist.... he told her on rising to sit on the side of the bed & fling herself down on one side & then the other which did seem to help ease the unsteadiness. At times she walked like a crab & we had to bring her back in line! Each have their own way with dealing with it but hopefully you've been given some exercises to do as a coping mechanism or being referred to Physio to give you a tailor-made plan. Concentrate on being as well as you can be & your lovely caring family around you will help I'm sure. I don't know if there's a dedicated HU Meniere's disease site but it might be an idea to seek one out, they may have some tips for you.
I'm pleased you've your big birthday to look forward to but if your family is "surprising" you with a party I'm sure they're doing it so you have all your closest family & friends around you to celebrate. Enjoy!!!! x
I meant to add is there nobody you can see about your pain, find something you can tolerate? Has attending a Pain Clinic ever been discussed, they don't just dole out pills, mindfulness & the like can be very helpful to some people. My h can't tolerate the meds he's had to date so I do empathise. I'm lucky in that my GP was able to sort mine, also my Rheumy Nurse has applied for funding for Tai Chi where I see her at my local hospital so I've put my name down for that & hopefully it'll come to fruition. See if I can manage my breakthrough pain with that instead of 30/500 co-co's! Got to be better.
It's just I know what uncontrolled pain is like, not just myself but my h who is needing further intervention. It's so draining & can really get you down particularly when sleep is disturbed. Really gently hugs coming your way. x
Although I don't have to put up with half as much as you, I hear what you say & it strikes a chord in me. I've got to the point where if something new goes wrong I start to panic.
I still don't understand chronic disease (does anyone?!). It's easy to think that it's all downhill after a certain point but I'm not sure that that is always the pattern. In a roundabout way I'm saying keep hoping & trying sylvi, you never know how it's going to pan out ..... it could all settle down.
3 years since I was diagnosed and I'm still working on acceptance. You think you've got there, then realise there's still a lot of work to do! I don't even have any pain at the moment but I do have fatigue & am scared of looking round corners as something always seems to be lurking, ready to crop up.
Sylvi, at 60 you're too young to have all this happening to you. I really sympathise, being in pain and having new things happening to you is not good. I think when we're down it is good to have things to look forward to - not just a birthday party but just a little treat. We often go to a nearby loch and have a sandwich and look at the birds. Just a simple thing but it does help.
Hi Sylvia you are a strong lady I'm sure you will find a way to cope. Try to keep your chin up and enjoy the things you can do. Big hug on it's way xxxxx
Oh Sylvi I am so sorry to hear that. You know we are allowed to feel sad at the loss of what we used to be abel to do. By grieving we can process what has happened and then think about how we plan our lives from there. It takes a while to accept the changes that occur. we get reminded too, on occasion when we go to do something we used to be able to do previously and I suppose it shocks and surprises when we realise we no longer can. It is part of the journey, part of the ability to adapt and be accepting. It doesn't mean we can't feel sad, or angry or miss those things. We are entitled to feel of that. I think we are all incredibly strong to be able to accept these changes and hurdles and still continue on and be who we are and accept each other as we are. Big gentle hugs
That is a lovely reply darling and thank you for that. I slept very well last night thanks to a little sleeping pill. This morning i am not in as much pain and i have been able to do a couple of things eg: put a busy Lizzie into the front garden and got rid of some dead flowers and i have done the ironing for my hubby which wil please him. When i have rested i am going to do a bit of tidying up for him. Hugs to you my friend.,xxxxx
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