More questions than answers.

[sylvi]

Here i am sitting here talking to you all and i have had 24hrs to digest what was said yesterday. Where to begin,mmmm thats the biggie. Because i have knocked knees when they did the replacement they didn't take that into account. Yes they did the knee right for a person who has a straight leg,well guess what i don't have one of those. It is such a simple to thing to check so why didn't they before they operated. Why when they did the op didn't they check the ligaments at the same time,instead of going back in 12mths later.

What damage has been done to the leg in the meantime and how successful will it be. Will they compensate me for my expenses of having to go private to get an answer, i bet not, but damn i'm going to try. What about my mental stress that i have been through,thinking that i'm going mad as nobody would believe me. What cost has that had on my health.

Yesterday was a bit of a blur as i couldn't get excited about finally finding out that i wasn't mad. My rheumy nurse was the one who reccomended this man. Makes you wonder what she knew that i didn't. Hey ho i'm sooo grateful to her for pointing me in the right direction. I rang my shrink this morning as she has said in the past that i should get it sorted before i could move on with my mental health. She was very pleased to hear from me with the news that i had to tell her.

Next task is to see my gp. That i think can wait as i'm not ready for that just yet. I feel a whole lot better just knowing,but i'm not there yet. One step at a time. Let this sink in before i take on anymore tasks with people.

I thank you all for keeping me going and not letting me forget that people do care about me. I hope that i can do the same for you all at sometime.

There will be more blogs to come before this sorry tale has a happy conclusion,more tears and i'm sure more laughs.

That is all for this little essay!!!!

Sylvi,(not mad after all)

[Hidden]

Gosh Sylvi what a turn up with that diagnosis! hope you get things sorted

Alison xx

[sylvi]

Thanks alison. It is such a simple thing that you think that they would have checked my leg before they did the operation. Sylvi.xx

[Hidden]

Yes lack of joined up thinking on their parts. Do take it as far as you can re compensation though because if they don't get a slap then how will they ever improve their practice. At least you are sounding a lot more positive now you've absorbed yesterday's consultation better. TTx

[beth48]

You have been so strong and brave to get this far,it's not an easy task to take on dr's especially when you are not in good health.Don't lose faith Sylvi ,2012 will be your year to get back on your feet,you deserve it !!! take care of yourself

:)) xx

[Gina_K]

Sylvie, That is unbelievable! we really put our lives in their hands. You should get some lega; advise, although very hard to get anywhere with Medical negligence. You poor thing. What will happen now? How do they correct your leg?

Glad you got some answers and are not mad, always a bonus to be sane

Regards, Gina.

[sylvi in reply to Gina_K]

Another surgeon is going to re-replace it. does that make sense. Xrays and a scan first and i'm on the list. I am optimistic now i know whats wrong.I want an apology at the least. Whats the point of being mad its not going to change anything i'm still going to have to have it sorted out, or i'll never going to go back and do a job if i want to. The leg will only get worse and its bad enough now and i feel it will only get worse than it already is.

I am so relieved to know whats wrong so i can concentrate on getting sorted out.

Sane i don't know about that!! lol.

Sylvi.xx

[sciqueen]

Hi Sylvi

Your persistence certainly paid off. You will have a fight with the establishment to get recognition, but remember whether they want to admit or not you know your own body and as long as you campaigned that something was not right and then got the justification, who will have custard on who's face????

Put all your energies now to getting the problem with your knees rectified. After all they owe you that much at least!

Sylv I had my first mtx injection and training session this afternoon and as a consequence I am extremely tired, so I am off back to bed.

Good news,

Take care

Sci xx

[sylvi]

Sleep well my friend. Hope the mtx will kick in soon. Be patient as it does take a while to kick in. I had to miss two of mine over xmas due to chest infection. My fingers are a bit delicate, but i was back on it this week so we'll see how it goes. xxx

[roger-s]

well sylvi the more i here about the care of the medical profession the less i trust them. we really have to be our own doctor and just take guidance from these people and do our own research. my father had a hart attack and went to hospital while he was in he was so confused he did not know his age etc , the nurses were great but the communication between different departments was not there, and we the family were kept in the dark , the doctors would visit dad and discus with him , but he was to confused to make any sense. i ma glade you have some answers and thanks for sharing. i don't like the compensation society, that only comes from insurance . i feel the surgeon should be punished , he earns mega money and should take responsibility , if a insurance pays does he care??????? if it hit his pocket he would??. good luck sylvi

[julieporter]

Sylvi

Would it be worth writing to the original surgeon for an explanation?I do understand how you feel but it sounds as if you are looking for answers rather than money and to stop it happening to anyone else.Contact details can be found on dr foster website.Just thought it might help clarify things for you and help you move on

Take care love

Julie x

[sylvi]

Thanks everyone. We have a pals at our hospital who deal with these sort of things and we will be contacting them sometime. Compensation won't turn back the clock for me and to be honest whats the point. I would like some explanation as to how it could have happened,as the pschio after i had the op noticed i was knock kneed. Not only that the hospital will get out of paying they always do. It also takes too long to get sorted by then i could be dead(funny one).

All i really want is some answers and acknowlegdment that i was right and they were wrong as i've been made to feel that i was mental,does that make sense.

Love to all, sylvi.xx

[Hidden in reply to sylvi]

Sylvie dear, It absolutely makes sense, which again proves you are not a mental case! Starting with the surgeon, all those involved should admit their inattentive, indifferent negligence. And then apologize that they made you feel as if you were responsible, or that you had to live with it. That line got me! How dare he, or anyone who deals with RA patients , to say, "You just have to learn to live with it" BS! Isn't that why we consult them, isn't that why they have a job? Oh boy, Loret's up on her soapbox

Anyways girlfriend, we are all here and will be with whatever you have going on this year. Love ya, LOret

[sylvi]

Thanks my darling,its lovely to know i'm not alone. xxxx

[Emilia]

Your not mad at all , I felt that way after trying to get a diagnosis for my ra , it took over four years and a lot of persistence , I have had operation for carpel tunnel that led to another operation for a massive nodule that the Carpel tunnel operation brought on , then my gp kept taking blood tests and because the r factor wasn't abnormally high at the time refused to believe I had arthritis despite my hands being huge and fingers like sausages , in the end he revered me as I kept going back and didn't give in an my specialist said altho my rh factor isn't too high other levels in my blood were and started treating me and it has made a massive difference , I was so low and in so much pain I got depressed , had to go on sleeping tablets and see shrink so please don't think you are alone , I still have moments when I'm low and in huge pain as this weekend as have been moving and having a huge flare , but you and the others on the blog have kept me going and I would also like to take the opportunity to thank everyone on the blog for this

[sylvi]

Emilia, isn't it a shame that we have to fight to get a diagnosis for when we know our bodies are not working right. I feel brighter just knowing that i was right. I can deal with it if i know what it is. Glad you enjoy the blogs,keep coming to here and we will create a huge family.

Sylvi.xx