Abatacept update from last week

[Otto11]

Hi Just an update after my call a week ago from Lloyds got cut off half way through them calling me about transferring to infusions.

Well after waiting a week & no call back I decided to call them yesterday. The lady I spoke to said there was no record of anyone calling me last week🤷🏻‍♀️ & even asked if I was sure it was from their company!!! I went through the full conversation with her but she just said she couldn’t understand why anyone would have called me as they don’t have an up to date prescription so can’t arrange anything.

So no further forward. I guess I just wait till someone else calls again 🤷🏻‍♀️🤷🏻‍♀️ Is anyone else in this situation?

[medway-lady]

Why not write to them and send by email but also do it BCC to yourself as then you'll have an audit trail. Explain whats happened, and also contact your hospital and ask is the presciption needing renewal ?if its not then the company have made a mistake or if it does then is it still going through to the company. Either way you need to find out as depending on when your supposed to get the infusion the date matters. Explain extra stress of chasing you could do without, and needing to arrange as holiday and other commitments need to be taken into account. Good luck and if you don't get a reply then email again but to Chief Executive or Customer complaints dept. But in my view its also your hospital you need to advise too.

[Otto11 in reply to medway-lady]

Thanks I will contact the helpline although they did say they would chase it. It’s a bit odd as I was off Abatacept for 7 weeks due to severe flu & pneumonia in March/April. Lloyds told me then when I restarted that they didn’t have a prescription for me. How often do they need a prescription? Anyway will start there. Why is it always me???

[Amnesiac3637]

As medway-lady says I think you need to be a bit more pro-active here.

It’s possible that whoever rang you from the company had entirely the wrong details, realised the mistake (or not) and never tried to ring you back. If, however, you’re still left hanging without your medication it’s definitely worth contacting your hospital rheumatology team which issues the prescriptions as it’s up to them to make sure they’re sent to the healthcare company. Keep a record of all calls, times and who you speak to and persist until you have a result. You shouldn’t have to do anything but it often doesn’t work out that way………..Best of luck.

[Otto11 in reply to Amnesiac3637]

Thanks. It’s odd they say they need another prescription though as they said the same in April. They have always been good & I’ve had no issues till April when they text me saying they had contacted me twice but couldn’t get hold of me. That was not the case. I had spoken to Lloyds on both of those occasions so not sure what’s going on.

I will leave it a few days then call Rheumy helpline. Very strange. Only me 🤷🏻‍♀️

[PSAWarrior28]

So sorry about the issues you are having. Lloyds won't issue prescription unless I've had an up to date blood test. Could this be the case for you? Hope it gets sorted out soon.

[Otto11]

Hi thanks. I had my last blood test on 1st May so would expect it to be still valid. I’m guessing they are valid for 3 months as that’s how often I get my bloods done. 🤷🏻‍♀️