I had first appointment with new Rheumatologist last week. I am so pleased to say that he was the best Rheumy I have ever seen ! He said that he intended to begin right from scratch and disregard anything previous consultants had diagnosed. He gave me a full examination, every single joint, fingers, toes, ankles, the lot. He was horrified by my rash which is covering my arms, back and neck, even my eyelids and under eyes. He got pictures on the computer to compare, said he was not sure if it was psoriasis, but could possibly be lupus bearing in mind the rash round my eyes and cheeks. My arms are hugely swollen because my elbows very inflamed, and boy, do they hurt.
Anyway I am going to hospital in the morning, I am having X Rays on feet, hands, wrists and elbows, plus chest x Ray because he said the drug he wants to put me on requires chest X Ray first (which drug would this be). I was on MTX a while back till previous Rheumy decided I was in remission and did not need drugs !! What a laugh. I have gone down and down since then. Hence being referred to new Rheumy by my wonderful GP.
I have a whole pile of blood tests as well tomorrow. Some are the usual ones, like ESR, LFT, Hb, CRP, C3 and C4, but there's some new ones and I'm not that sure about them.
These are the ones :-
Ro/SSA, La/SSB. Jo-1. sci-70, Smith
Autoimmune antibodies connective tissue disease ANA only
Bone (incl. Magnesium).
I was actually diagnosed with RA 9'yrs ago. I had a very severe bacterial infection and this set off the RA within weeks, it hit me like a brick wall. I was on MTX and just about managing, but having flares quite frequently. During this time I have completely lost hearing in one ear, now losing hearing in other ear. Ent consultant says I have auto immune hearing loss. I was diagnosed with uveitis in May together with macular oedema and inflamed optic nerve. Again my eye consultant said it was all down to uncontrolled inflammation. He was horrified that my Rheumy had said I was in remission and advised me to find new Rheumy ! After guidance with my GP I have now seen this new Rheumy.
I have suffered osteo arthritis for many years, in fact I have been in pain most of my life, having had rheumatic fever as a five year old. My spine has sustained two stress fractures and several disc ruptures and bulges. When in the consultation last week I said to Rheumy that I did not think anyone understood the pain I suffer constantly. He said he absolutely did understand my pain and that he would sort me out. He was so kind and understanding and I have great hopes in him.
Meanwhile my rash is driving me round the bend. I am having to wear sleeveless tops because if I wear sleeves over my arms the warmth send the itching into overdrive.
So I am freezing cold as temperature drops !
But hey, I have good news too, our youngest daughter is pregnant with her second child. She already has one child, our adored 12 year old grandson, our only grandchild. She had to have IVF to have him and had completely given up hope of ever having another baby. She was divorced several years ago and is getting married again in January. We are praying for her to be well as she has had several miscarriages over the years. She is 40 yrs old now.
I would be pleased if anyone could enlighten me re. These extra blood tests,