Hi I was diagnosed with RA earlier this year. I was on MTX and am still on low dose of steroids. I stopped taking the MTX about 5 weeks ago. In the last 2.5 weeks I have been in agony daily. I think I have not had more than maybe 3 days where the pain is just bearable. I saw Rheumy and Dr both told me to increase my steroids for a week. Rheumy said to increase to 5mg daily for 5 days , Dr said 30mg daily for 5 days. Rheumy also told me I must go back on Methotrexate. The thing is despite having two different rheumatologists tell me I definitely have RA my pain always seems to flare up later afternoon early evening. Pain is so bad some nights I can't sleep. Also Rheumy said 10 days plus is long for a flare up. I have been taking 30/500 mg co codamol every night for the last week in the attempt to get some sleep. Does anyone else feel pain much more acute as day progresses and has anyone else had a flare lasting over 2 weeks. How did you deal with this I am getting really frightened that this pain may never leave me. Additionally I noticed that in afternoon evening after I have eaten pain seems to increase. E.g. today I had boiled egg for lunch followed by blueberries a banana and pumpkin seeds my pain has got really bad.
I am not managing have been so tearful and am at my wits end. Please any tips would be great.