At long last: I hadn’t heard from healthcare at home... - NRAS

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At long last

Matilda_1922 profile image
5 Replies

I hadn’t heard from healthcare at home or hospital since Friday so I called healthcare at home yesterday. I was informed they had received notification that I can have 25mg benepali twice weekly for this month and should be changed to 50 mg next time.

It’s being delivered tomorrow. Why don’t they call you to say they have received notification from the hospital. I feel if I hadn’t made the call yesterday I would probably not have had the delivery tomorrow.

I also called the hospital again and left a message to call me back as I’m in a lot of pain. Didn’t get a reply from last weeks call. So waiting in anticipation!!

I have a GP appointment today but not very confident they can do anything usually say call hospital. Supposed to have shared care.

The NHS is certainly going downhill.

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Matilda_1922
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Gnarli profile image
Gnarli

Golly. You aren't having much fun at present are you? I sincerely hope you get a response from the hospital very soon.

Matilda_1922 profile image
Matilda_1922 in reply toGnarli

My GP practice has recently been taken over by a larger one. I saw a GP who was quite surprised I couldn't straighten my right arm. It's getting to a point I can't do anything with it as it is very painful. They gave me some anti inflammatory gel (I am taking an anti inflammatory) to rub into the elbow joint. I am to have an xray then go back for a steroid injection. So I think it's was quite a positive outcome. By the way rheumatology consultant said it's not RA causing the swelling it is fatty tissue ' I know I'm overweight don't need to rub it in'

So on Monday I'm off for an xray then book a double appointment.

Gnarli profile image
Gnarli in reply toMatilda_1922

Well your treatment has been just poo hasn't it? I sincerely hope that this new GP follows this up - as they should - and you get some long overdue help

Matilda_1922 profile image
Matilda_1922 in reply toGnarli

I hope so not been sleeping very well cue to discomfort and not finding a comfortable position.

Gnarli profile image
Gnarli in reply toMatilda_1922

That sounds lousy. Wishing you better x

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