Posts - Kidney Transplant | HealthUnlocked

Kidney Transplant

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VHL Patient with Kidney Tumors in remaining kidney Iron IV

Hello All, Would like to know out of curiosity. Has anyone had Iron Infusions while having Kidney tumors? If yes, do you know if it can cause them to grow...

Hello All, Would like to know out of curiosity. Has anyone had Iron Infusions ...

Boxing

•1 day ago

Be the first to reply

BK viral load

I had my monthly bloodwork and only one thing came back high which has never registered anything at all in the 19 months since my transplant. The test was...

I had my monthly bloodwork and only one thing came back high which has never reg...

Tankjsl

•1 day ago

4 Replies

Help Please!

I'm new to the community and would love to hear advice from others about preemptive kidney transplant. My GFR is in the 16-17 range, creatnine 2.9 and I'm...

I'm new to the community and would love to hear advice from others about preempt...

DivabeticLeslie

•2 days ago

9 Replies

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2 Year Anniversary

On Nov 16, 2022, I received the precious gift of a new kidney. It came from a deceased donor. My renal panel data has been very strong and consistent since the...

On Nov 16, 2022, I received the precious gift of a new kidney. It came from a de...

Jayhawker

•5 days ago

24 Replies

Giving People on the Kidney Transplant Waitlist a Voice in Organ Offers

Should kidney transplant patients know when a kidney offer is turned down? Discover how transparency can empower waitlisted patients to make informed decisions...

Should kidney transplant patients know when a kidney offer is turned down? Disco...

JackieJ_NKF

Partner•6 days ago

7 Replies

New HHS director overseeing cms. Medicare alert for transplant patients.

Just 2 days ago I had a conversation with my transplant doctor about my concern that with a new administration that my medicare subsidy for my anti rejection...

Just 2 days ago I had a conversation with my transplant doctor about my concern ...

Eyak1971

•7 days ago

19 Replies

Need for oxygen

I did a 6minute walk test and pulomnary function test and had a chest xray due to low oxygen saturtions at doctor's office. I stay in the 80's most the time...

I did a 6minute walk test and pulomnary function test and had a chest xray due t...

HSV21

•7 days ago

1 Reply

iron Infusion results 4 weeks later

hello I had an in iron IV 4 weeks ago as my ferritin was 27 (low end). Had a blood test yesterday Seems like it’s too high right now though! Is this normal...

hello I had an in iron IV 4 weeks ago as my ferritin was 27 (low end). Had a blo...

Boxing

•8 days ago

10 Replies

When masking, what counts as a public space?

I’m still wearing a mask in public and socializing outdoors, but I’m wondering about other spaces and activities. If you’re also still wearing a mask in...

I’m still wearing a mask in public and socializing outdoors, but I’m wondering a...

MusicalEighth

•9 days ago

11 Replies

Lantus Solos diabetic long acting insulin not available after 1/1/25--what are you taking?

My spouse received his kidney transplant almost 6 yrs ago this month and takes 2 different insulin medications, Novolog and Lantus. Lantus is taken before...

My spouse received his kidney transplant almost 6 yrs ago this month and takes 2...

GardnerADK

•11 days ago

6 Replies

Pth treatments

Trying to take a survey of transplant patients like me who have high pth and what their doctors recommended. It is not as high as when I was on dialysis but...

Trying to take a survey of transplant patients like me who have high pth and wha...

Eyak1971

•13 days ago

14 Replies

Fear of Medicare changes

Medicare is so important to transplant patients as well as dialysis patients. The fact that it might be privatized in the new administration has me worried. I...

Medicare is so important to transplant patients as well as dialysis patients. T...

Eyak1971

•15 days ago

20 Replies

Kidney Transplant & Folliculitis

Definition of Folliculitis is: Folliculitis is a common skin condition that happens when hair follicles become inflamed. It's often caused by an infection...

Definition of Folliculitis is: Folliculitis is a common skin condition that hap...

Ynnep

•16 days ago

11 Replies

So many issue

I had my living donor transplant February 2021. My eGFR is currently at 30. I've been fighting with the BK virus for over a year now. Nothing seems to help. My...

I had my living donor transplant February 2021. My eGFR is currently at 30. I've...

bisley

•19 days ago

10 Replies

Magnesium Levels

Hi, All. I'm nearly 7 years post-transplant. My magnesium levels are chronically low, despite heavy supplementation. I've tried all the various varieties...

Hi, All. I'm nearly 7 years post-transplant. My magnesium levels are chronically...

blackkat2

•20 days ago

14 Replies

Hello, I am new to this group and am looking for like minded people that I can relate to.

My younger and only brother is in stage 5 kidney failure. I have appointments to be sure I am free of any ailments. I am scheduled to be in Chicago for more...

My younger and only brother is in stage 5 kidney failure. I have appointments to...

Loveistogivelife

•28 days ago

15 Replies

local vs remote donation

I’m trying to decide whether to stay in my hometown to donate to my family member vs traveling to where they live and donating there. From a logistical and...

I’m trying to decide whether to stay in my hometown to donate to my family membe...

Red_wagon_78

•1 month ago

8 Replies

How does your transplant center/doctor treat illness

I am two and a half years post kidney transplant. I have called my transplant center when I have had a fever and been told by the front desk staff that if it...

I am two and a half years post kidney transplant. I have called my transplant c...

PKDpostTRANSPLANT

•1 month ago

12 Replies

Pd fluid scarcity due to climate change

Has this effected anyone? https://thehill.com/policy/healthcare/4941096-how-hurricane-helene-is-threatening-dialysis-patients/

Has this effected anyone? https://thehill.com/policy/healthcare/4941096-how-hurr...

Eyak1971

•1 month ago

12 Replies

Still wearing a mask.

I am three years out from a deceased donor transplant and still wear a mask when out in public. At my last lab draw I saw someone who had his transplant...

I am three years out from a deceased donor transplant and still wear a mask when...

Hawk12

•1 month ago

39 Replies

Fatigue

Five years post-transplant with good numbers, yet always fatigued. Anyone else? Any insights?

Five years post-transplant with good numbers, yet always fatigued. Anyone else? ...

peregrin

•1 month ago

5 Replies

mild low Phosphate/Iron IV

hello all So I had an Iron IV (first ever) on Tuesday morning and then went to the boxing club Thursday evening and literally when I finished I ended up...

hello all So I had an Iron IV (first ever) on Tuesday morning and then went to...

Boxing

•1 month ago

6 Replies

An Urgent Call for Action: NKF Testimony on Organ Transplantation Reform

Dr. Jesse Roach testified for kidney transplant reform, highlighting the plight of over 800,000 kidney failure patients and 90,000 on the transplant waitlist....

Dr. Jesse Roach testified for kidney transplant reform, highlighting the plight ...

JackieJ_NKF

Partner•1 month ago

Be the first to reply

dialysis and immune system

hello all I am aware a kidney transplant impacts our immune system as the meds are immunosupresssion. However, does this mean we have no immune system at all...

hello all I am aware a kidney transplant impacts our immune system as the meds ...

Boxing

•1 month ago

5 Replies

Dialysis

Hello All just wanted to know how many years have or was on dialysis and how did you cope? I may end up here and I am 34.. I hear you can’t live long on...

Hello All just wanted to know how many years have or was on dialysis and how d...

Boxing

•1 month ago

24 Replies

long wait for typeO

My husband, who is also type O, had to wait 6 years for his transplant. He got the call in October of 2020 in the middle of the COVID pandemic. He’s doing...

My husband, who is also type O, had to wait 6 years for his transplant. He got ...

Bird_watcher

•1 month ago

1 Reply

o blood group kidney transplant

hello Anyone with an O blood group how long did it take you to get a kidney transplant while being on dialysis? My understanding is O blood group is hardest...

hello Anyone with an O blood group how long did it take you to get a kidney tr...

Boxing

•1 month ago

40 Replies

If I am allowed to fly by plane for 2 hours

Hello dear friends! I am 5 months after the transplant and I have to fly 2 hours by plane, I ask you: Is it ok for me, do I feel good? Thank you!

Hello dear friends! I am 5 months after the transplant and I have to fly 2 hour...

Doru007

•1 month ago

10 Replies

Kidney Transplant aged 34

hello, I am quite young but will need a kidney transplant most likely within the next year. I wanted to know what should I expect? At my age would I need...

hello, I am quite young but will need a kidney transplant most likely within the...

Boxing

•1 month ago

17 Replies

setbacks after transplant

Kidney transplant done in June Having setbacks with meds, infections. Any one else having problems? Have a very low magnesium level. Mag meds causing...

Kidney transplant done in June Having setbacks with meds, infections. Any one e...

DD2O

•2 months ago

7 Replies

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Posts - Kidney Transplant | HealthUnlocked

Kidney Transplant

VHL Patient with Kidney Tumors in remaining kidney Iron IV

BK viral load

Help Please!

2 Year Anniversary

Giving People on the Kidney Transplant Waitlist a Voice in Organ Offers

New HHS director overseeing cms. Medicare alert for transplant patients.

Need for oxygen

iron Infusion results 4 weeks later

When masking, what counts as a public space?

Lantus Solos diabetic long acting insulin not available after 1/1/25--what are you taking?

Pth treatments

Fear of Medicare changes

Kidney Transplant & Folliculitis

So many issue

Magnesium Levels

Hello, I am new to this group and am looking for like minded people that I can relate to.

local vs remote donation

How does your transplant center/doctor treat illness

Pd fluid scarcity due to climate change

Still wearing a mask.

Fatigue

mild low Phosphate/Iron IV

An Urgent Call for Action: NKF Testimony on Organ Transplantation Reform

dialysis and immune system

Dialysis

long wait for typeO

o blood group kidney transplant

If I am allowed to fly by plane for 2 hours

Kidney Transplant aged 34

setbacks after transplant

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