Restless legs

[Suzie1995]

Hi everyone. I get restless legs alot of times .but my doctor says its just part and parcel of ckd ..any help ?I do use tiger balm that does help sometimes

[Bassetmommer NKF Ambassador]

HI Suzie,A doctor that dismisses a condition that is interupting sleep is in my opinion not a good doctor. Yes, it is true that having late stage CKD can cause sleep issues such as restless leg syndrom. BUt there are things you can do to mitigate them. I for example, when I cannot sleep or wake up in the middle of the night, I will take melatonin. I only take 2.5 mg and it is enough to put me under and sleep well. For restless legs, there are medicines and doing exercise such as walking and cycling helps. It is important that you get good quality sleep when you have a chronic illness as the body needs it to help combat the deficiencies that come with CKD.

[Suzie1995 in reply to Bassetmommer]

Hi thank you for tbe reply and will try thst i am at stage 3 but used to be able to sleep but the last few months I sleep for about 3 hours then awake for about 2 hours and so on .I am getting so tired...

[navastar in reply to Bassetmommer]

In reply to restless legs OMG- so glad to hear this as I get severe leg/feet cramps at night I have neuropathy in my feet unable to take me Lori one I have significant side effects on most meds I am stage 3 CKD with only one kidney but I strictly follow a renal diet which fortunately has brought my #’s up but I have significant all over body pain primarily in am late pm must keep moving then I am ok but when going to bed get up about twice a night for hot bath with episode salts really helps with pain my mds don’t know reason at this time but I/my son who owns a therapy’s agency has been doing research which I have shared with my mds they are interested will review- just heard there is a genetic test one can take to det meds you can or cannot take anyone knows about this I plan to do further research will share all I find out- 🙏🏼‼️

[Suzie1995 in reply to navastar]

Yep.i have heard that as well so hopefully there is

[Darlenia in reply to Suzie1995]

You may want to try magnesium glycinate capsules to calm your restless legs so you can get a good nights rest. Magnesium comes in many forms - be careful to pick only the glycinate form as that's the one that calms restless legs. You can find it online (Amazon) or possibly at your local vitamin store. It's inexpensive. My husband has terrible restless legs like you have and that's the only thing that really works - he takes it right before going to bed. Hubby has had restless leg issues for years which progressed in severity (completely unbearable) when he recently went on dialysis. It may work for you too as kidney disease takes a toll on one's magnesium levels. Good luck.

[Suzie1995 in reply to Darlenia]

Ah thats brill will try that thank you

[navastar in reply to Darlenia]

Thank you so very much with this info will call my psychiatrist tomorrow as he knows my entire history like PCP should be like he actually knows my entire situation which is all intertwined with each other fantastic doctor met him when hospitalized last year after previous psychiatrist doubled my lithium prescription pharmacist didn’t even alert me of change of dosage I had been on for 38 yrs then boom all hell breaks out haven’t been the same since- did advise/reported a grievance against md however that was March right when pandemic hit hard have never heard from them but of looking for attorney will pursue as I have researched how often this is done and no accountability occurs - not only pursuing this for me but for the thousands who have had same experiences- will keep y’all updated been a terrible year in so many ways “let’s just pray and not worry “ my montra daily‼️‼️‼️🙏🏼🙏🏼🙏🏼Our health is first foremost‼️‼️‼️😷🤞🏼🤞🏼🤞🏼🤞🏼🤞🏼🤞🏼

[Bond-007 in reply to navastar]

Kidney disease can lead to anemia which interferes with sleep & causes restless legs. What is your Hg level?

[orangecity41 NKF Ambassador]

Here is a link to Davita about restless legs and CKD. Education and being proactive is important for us with CKD. I have peripheral neuropathy which maybe connected to CKD and do have a neurologist, however there may be other factors causing it also. I am at CKD level 3b. davita.com/education/kidney...

[Suzie1995 in reply to orangecity41]

Thank you will have a look..

[orangecity41 NKF Ambassador in reply to Suzie1995]

You are welcome. Maybe a neurologist might be of help.

[Suzie1995 in reply to orangecity41]

My doctor doesn't think I need to be referred to anyone. I am.going private to see a dietician...

[orangecity41 NKF Ambassador in reply to Suzie1995]

We do the best we can to be proactive for ourselves.

[vinadhun2 in reply to orangecity41]

I have studied this article. Is it possible to get rid of numbness in feet by exercising instead of taking medicines like gabapentin.

Can regular exercise like cycling walking and weight training help to alleviate the problem so that youcan avoid medicines which could have adverse side effects

[orangecity41 NKF Ambassador in reply to vinadhun2]

Good question. I do regular walking and it might help me more than I think.

[navastar in reply to vinadhun2]

I walk a lot must keep moving to get relief from pain throughout body I even go out at midnight to walk to relieve pain then take hot bath I dread early am late pm when pain is most significant is why my sleep is limited why/what causes????

[navastar in reply to orangecity41]

Interesting neurologist ran tests found I had neuropathy on feet is why I loose my balance falls bump into things frequently but found no nerve damage still unknown my situation 🤷🏻‍♀️

[orangecity41 NKF Ambassador in reply to navastar]

I have 2 types of neuropathy, one is hereditary and other is peripheral of unknown cause ( being 79, could be age related ).

[Bond-007]

What is your latest Hg number, hemoglobin? Do you take aspirin? Do you have heart failure? Thank you,

[Suzie1995 in reply to Bond-007]

I dont have a heart condition I used to have svt but had a op 2018

[bpnirvana]

I would strongly consider changing doctors. A neurologist prescribed Pramipexole to be taken before bedtime each night for restless leg syndrome. The result--no more restless leg.

[Suzie1995 in reply to bpnirvana]

Thank you I am thinking of changing docs

[Suzie1995 in reply to bpnirvana]

Thank you I am thinking of changing

[New2]

Hylands as a product for leg cramps and one for restless Legs. There is also magnesium lotion . Both work for me.

[Suzie1995 in reply to New2]

Ah thank you for info

[Suzie1995 in reply to New2]

Thank you for info

[Hidden]

When I began taking magnesium for my afib, I nearly eliminated my restless leg problems. Occasionally when it recurres, I rub on magnesium oil which always helps. I also drink mote water to hydrate my muscles. Best to you!

[Carillon in reply to Hidden]

Are you on HD?

[Suzie1995 in reply to Carillon]

Hd?

[Carillon in reply to Suzie1995]

Hemodialysis

[Carillon in reply to Carillon]

Where do you buy the magnesium oil

[Hidden in reply to Carillon]

Amazon

[Suzie1995 in reply to Carillon]

No .I just have blood tests every 6 months at docs thats it

[Hidden in reply to Carillon]

I am sorry. I don't know the term HD.

[Beverly945]

My doctor has me on REQUIP. I think it is the best med. there ever was for restless legs.