Hi all! I am a 20 year old college student (biology education major) and I currently have stage 4 CKD. I'm getting ready for transplant and I'm hoping that one of my family members are a match and I can get my transplant before dialysis (currently 18%). It's sort of weird for me because I was born with only 1 kidney due to having VACTERL syndrome (or VATER association) and I've been dealing with this my whole life. I try to stay active whenever I'm not sleeping...which is hard because I sleep most of the day now if I don't have multiple alarms set and I'm currently on a renal/diabetic diet hybrid.
I was hoping to be able to hear from other people about their experiences having the disease and was also hoping to hear from people who are already on dialysis and/or going through the transplant process as well! I know that I have a long road ahead and am open to advice on exercise ideas, food ideas or just a take on another's experience. Thank you!