Hello all!
Today marks 2 weeks since I received a live donor transplant! It has been quite the rollercoaster for sure; I'm still getting used to going to the bathroom more than a few times a day, and eating foods that I haven't enjoyed in so many years it was like eating it for the first time! I'm also having to force myself to drink the 80 oz of fluid minimum, since I'm used to only drinking 55 oz in a day, and caffeinated beverages counted then, but not anymore. I have a system though, which is one bottle of water (tall 760ml) before lunch, one or two before dinner, and one before bed. I drink one full bottle with my morning and bedtime meds, and it's easier to make myself drink more than is required than fall short and suddenly get very thirsty.
My creatine dropped from over 5.8 to 0.94 in the last two weeks, my phosphorus levels are actually way too low so I'm taking supplements and am required to eat a high phosphate item with every meal. Potassium is a little low, but they're having me get that in through food as well. My blood pressure has dropped to a normal level since starting a new blood pressure med, which is making a world of difference as well.
I haven't had a gout, fibromyalgia or migraine flare since surgery and my energy level is much better too! I'm still having some incision pain, so I'm trying to do simple tasks myself like getting my own water, making my own food if it's super easy and doesn't require bending (go sandwiches and leftovers!) and keeping myself occupied with books, games and walking laps around my staircase. There's still a lot of pressure in my abdomen, but it will decrease with time. As per my previous post, I am still having side affects like the tremors, insomnia and hot flashes, but my mood swings have stabilized. I start the tapering process in two weeks, and I'm hoping that my other levels come up enough that I can start going off of my supplements too!
It is a very slow process of learning how to live with a transplant, since there's a lot to think about that I didn't have to worry about before, such as wearing a mask everywhere I go, what I touch, who I put myself around (they could be sick), where I go, how I dress (meds make me at risk for skin cancer and I'm super pale anyways so keeping myself covered either with clothes or sunscreen is a must) and food prep/ what I'm eating. My family has been super supportive and is making sure that I don't accidentally forget to wash my hands before and after eating, that I take my meds on time and that those who visit take the proper precautions. My step sister (donor) is basically back to normal, and she left yesterday to go back to school! I'm super excited for her and I'm thankful that she was willing to take some time off to do the surgery!
Hi... was blessed to have a kidney transplant 6 weeks ago... anyone eve struggle with the meds?
Recipe help available to make your cooking and baking dishes tasty and healthy.
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