It's official! Update on transplant!

[Ladybug_05]

It's official! I'm slated to get my live-donor transplant in early December of this year! I'm very excited and nervous all at the same time. Despite only being on dialysis for 11 months, it's been quite the rollercoaster and there were a few times we had to ponder the possibility of me going back to hemo from PD. It also took a little longer for me to get cleared between having perotinitis and bad acid reflux, but thankfully the infection cleared up and I have my acid reflux under control now with medication.

For those of you who don't know, my step sister decided to start the donor process in March, and she was cleared in September. She was the 4th and last person to go through the donor process and I'm very fortunate and lucky that she changed her mind to go through this process! We're both very excited that this is finally happening, and our family and friends are excited too!

It's been a long journey, and I'm more than ready to see what it's like to have a functioning kidney since it's been so long! Thank you everyone for your ongoing support!

[Charlene_Coxhead]

What wonderful news ladybug I'm so pleased for you both. It's a hard emotional journey but your the final step if the journey. Good luck to you and your step sister. Please keep us posted. What a fantastic early Christmas present. Your ok date is my dad's birthday and a new start for you.

Charlene x

[Ladybug_05 in reply to Charlene_Coxhead]

Thank you! It's definitely a step, even if it isn't the final one (given my young age I'll need at least one more transplant...but that's far away).

[Charlene_Coxhead in reply to Ladybug_05]

If you don't mind be asking how old are you? I'm 38 diagnosed at 21 even though I was born with kidney disease had no symptoms.

You never know with modern advances you may only need one that's my hope for myself. On the transplant list as my live donors didn't work out.

All the best and keep us posted x

[Ladybug_05 in reply to Charlene_Coxhead]

I just turned 21 this year! I was born with a single kidney that had complications from my VATERs syndrome, so I wasn't even expected to make it this long at all, let alone stretch my kidney to 20 years old. As of now, live donor kidneys can last 15-20+ years if you take care of them properly, but since I plan on having a long and happy life, it's a given that I'll more than likely need a second transplant, if not also a third. I'm hopeful that by the time that happens, stem cell resesrch will be able to make kidneys and other organs so that rejection meds aren't needed and the kidney will more than likely last a lifetime.

[Charlene_Coxhead in reply to Ladybug_05]

Fingers crossed for medical advances. Sounds like you've done an amazing job making your existing kidney work for as long as it did. You've beaten the odds once let's hope you do it again.

I was at the transplant games this year as a volunteer and one of the recipients I was talking too has had is kidney for 38years and still working at gfr of 60 which is amazing.

Good luck with the opportunity and let us know how you get on.

Charlene x

[Bunkin]

Congratulations! You are so blessed to have family that wants to help you. Praying for a successful journey😀😀

[Ladybug_05 in reply to Bunkin]

Thank you!

[Smokey2014]

That is such wonderful news!

I'm so glad I decided to go on this forum today!

I'm so excited for you!

This post made my morning..

May God Bless you and your sister forever..

I knew it would get better for you!

[Ladybug_05 in reply to Smokey2014]

Thank you! I'm glad that this post made your day better!

[athenat]

Yay!!!!! So happy to hear good news on this board. Every time I hear a live donor from family or friends, my heart melts. Praying everrything goes well for u.

[Ladybug_05 in reply to athenat]

Thank you!

[Bet117 NKF Ambassador]

Hi Ladybug,

Thanks so much for sharing your fantastic news! I am so excited for both you and your step-sister who will forever share a strong emotional bond.

Sit tight and trust your medical team..we as well as they will be with you every step of the way.

Sending you warm healing thoughts and lots of positives.

Bet

[Ladybug_05 in reply to Bet117]

Thank you! We already have a shared nickname since we're very close- this just makes it official haha! Trusting my team is what everyone keeps telling me, so keeping that in mind is making this a lot easier.

[Zazzel]

So happy for you! Sending prayers and positive vibes for an easy and successful transplant!

[Ladybug_05 in reply to Zazzel]

Thank you!

[DeanSamson]

Congratulations ladybug_05.

[Ladybug_05 in reply to DeanSamson]

Thank you!

[Hidden]

That’s such great news! I’ll keep you in my prayers and hope your operation goes very smooth and you’re able to live a new and healthy life! ❤️

[Ladybug_05 in reply to Hidden]

Thank you!

[itzmich]

Congratulations hopefully you have gotten your transplant and are on the way to healing. Please let us know.

[Hvpinky]

How was you right now ladybug is it everything fine

[Ladybug_05 in reply to Hvpinky]

Hello Hvpinky,

I am going to be celebrating 6 years post transplant on the 8th of January. It's a little hard to believe that when I first joined this page, I was in my early 20s. I'm doing very well, except for having type 2 diabetes. I'm managing it with diet and exercise, and no medication.

The kidney is doing awesome! It's steady between 84-98% GFR. No signs of rejection, and it's nice having enough energy to go for hikes and things now.

As for me, I'm graduating with my bachelor's degree in the spring! I was able to do an internship over the summer this last year, and I'm also getting married!

[Hvpinky]

Congratulations happy for you 😄Sorry for asking how much that cost that u paid for your transplant

May b it's helpful for me

Thanks

[Ladybug_05 in reply to Hvpinky]

Honestly I would have to ask my dad. I was on his insurance at the time.

[Hvpinky]

Okay understand,get transplant with same blood group?

[Ladybug_05 in reply to Hvpinky]

It depends on your blood type. I'm AB, so I'm a universal recipient. Typically, it's your blood type and type O.

[Hvpinky]

Really I'm type 0 now at ckd 3b Firstly I have iga nephropathy then now my left kidney have cyst type 2

My appointment with urology on 10 January

My egfr now 44

Hopefully after remove my kidney cyst egfr to stable