haven't been here for awhile

[pamgarner]

i am feeling bat crap crazy! the last ocrevus infusion, i came down with shingles, yes i had shot and a case of Herpes virus.! now it is colitis urgghh! i am on strong antibiotics and no steroids. this ms thing sure complicates things,so i need to call neuro for new med i think, been on ocrevus 6 yr. ,time to change i guess. it seems things are happening daily, had a car wreck someone pulled out a side street and t-boned me,my car was 12 years old so it was an excuse to get a new used car, 2020 lexus love it.so there is always some sunshine and me and my hubby weren't hurt amen.still and always be dealing with big ms some days overwhelming.thanks for listening

[jimeka]

Pam, so glad that you are ok from the car crash, but so sorry about the shingles and colitis, I hope you get it sorted soon, blessings Jimeka 🤗

[ahrogers]

I am 7 years in on Ocrevus. I hadn't had any issues with infections until a few months ago. I have a skin fungal infection called seborrheic dermatitis that I am having trouble keeping under control. I am sure the immunosuppression isn't helping.I hope you find something that serves you better!

[4fishylady]

So sorry for all your troubles. Life can throw lots of stuff at us, all at one time. Good to see your name here again. I'm not on much anymore either, but love to see the "old-timers" names here every now and then. I'm still doing very well, compared to most of you. I am on Kesimpta, and it's doing well so far, going on 2nd year of it. Praying you'll soon get to feeling better, and maybe another type of DMT.

[Fancy59 CommunityAmbassador]

Pam, first I want to welcome you back, you've been missed in the chat room. Secondly I had to get off Ocrevus because as I aged, hit my sixties, my immune system weakened and that combined with the Ocrevus also weakening my immune system I got some very bad infections. I too went through a very rough streak having to spend 2 weeks in the hospital and another 2 weeks in a rehab center to build backup my strength. Because of my MS and the infection my body decided It wasn't going to listen to me any longer. I had literally little to no control over anything. I felt like I was a paraplegic. It wasn't a fun feeling.😒😪 Fancy59.

[pamgarner in reply to Fancy59]

ever feel like you are in a pit? it's is good to know i am not alone

[Goldilockssearching]

hi pamgarner

Sounds like you’ve had a go of it-sorry 😞

Do they think your development of colitis falls under “rare side effect “ they’ve been mentioning recently?

Hope things start to look up & you find a new treatment plan that works for you.

Is hubby doing well?

[pamgarner in reply to Goldilockssearching]

he is doing good, thanks

[Tazmanian]

Glad you survived the crash enjoy the new car

[pamgarner in reply to Tazmanian]

you bethcha

[AquaZumbaFan]

I’m am really sorry you are going through all of these traumatic experiences.. any one could have been stressful but all of those things together.. that’s a lot 🤗 so glad there was sunshine after the storms

[pamgarner in reply to AquaZumbaFan]

thank goodness or i would be goofy

[Neworleanslady]

glad you weren’t injured in the accident!

[leking1]

I am so sorry that you had to go through all of this. I am so happy that you weren't hurt any worse. Take care of you, heal, rest and when you feel better, come back to us.🤗🙏

[Raingrrl]

Hi Pam…sorry you’ve been on a roller coaster! I’ve had trouble due to Ocrevus similar to Fancy1959 but different too. I was sick with bad infections most of last year. Had 2 hospital stays and surgery all because Ocrevus depleted my immune system so badly. I’m not on a DMT currently and will be getting a second opinion about that in July. I’m now leary of all the b-cell depleters.

[pamgarner in reply to Raingrrl]

oh patient, heal thyself,what to do?? this too shall change

[BlanketTime1]

i'm sorry. you are going through it right now. as the adage says, it always seems to come down on you all at once. i'm glad you like your new car.🤗

[pamgarner in reply to BlanketTime1]

thanks

[IFwczs]

Glad to hear you are ok after the car crash.

Ocrevus has done no favors for me, it was really doing more harm than good to me. A lot of damage. Zero benefits.

[carolek572 CommunityAmbassador]

Wow,   pamgarner , glad that you were not hurt in your car accident. Wishing you a restful, quiet summer, and look forward to hearing about your ordinary adventures!