Hello! MS newbie here.

[sski1]

Hi! I was just diagnosed with MS in Jan after a bout of severe optic neuritis. I lost a bunch of vision in my left eye. Starting on Ocrevus soon, even though it seems kinda scary because it's so new. But I'm going through with it anyway because it might work! Any positive feedback and tips and tricks would be helpful. Also, my MS has only so far attacked my eye, so all of this is pretty new to me.

[RoseySawyer]

Hi and Welcome! 😊❤🌷

[IFwczs]

Ocrevus is the only MS medication that can slow down the disability progression. It's not that new, I wish I had gotten on it when it first came out. You will love this forum too - everyone is supportive and great! Welcome to Ocrevus and our forum!

[RoyceNewton]

G'day sski!, did I spell that right? There is several very short messages that I have written about things that you may do as a newly diagnosed person. I am not sure exactly where they are on this websight, but you could ask one of the ms ambassadors. Ask them if they can not help I am sure somewhere I can find the reprints for you. Hey If you ask nice I possibly could rewrite them again for you. Either way, G'day and welcome to the fanily.

[falalalala]

My recommendation is to exercise.It has helped in so many ways.

[Iona60]

Welcome! I'm on ocrevus. It's really not scary compared to all of the other choices. It's one of the most effective and has minimal to no side effects. Prepare on being at the infusion center for around six hours. I send my husband out to get lunch and snacks. I watch movies on my phone. The time goes by quickly as you may spend some of it sleeping from the Benadryl.

I hope that your vision improves. We're like one big family here and I'm glad that you found us.

[jimeka]

Hi, sorry about your diagnosis. What type of ms have they diagnosed you with? As a whole we share just about anything, we all seem to like pets, cats, dogs, goats, rabbits. Also we like to share crafts, things that take your mind off ms, and develop a side of you that you didn’t know existed. Blessings Jimeka 🦋 🍫

[sski1 in reply to jimeka]

So, weirdly enough they didn't tell me what kind of MS I have. I'm going to assume it's RRMS because I apparently had a previous relapse and didn't notice. They said it was probably a lesion from years ago. There are tons more questions I have to ask. They were between NMO and MS and when my tests finally came back negative for NMO antibodies they decided to officially rule it out. I was totally relieved. So relieved that I kinda forgot a lot of the other burning questions.

[jimeka in reply to sski1]

Hope the Ocrevus works well, let us know how you get on. Blessings Jimeka 🦋 🍫

[greaterexp in reply to sski1]

Welcome! Many of us keep a written journal of our symptoms, whether or not we think they are related to MS. This can help our doctors a lot, as well as ourselves. We also keep a list of questions for our doctors, since it's too easy to forget them when we're in the office.

I'm sorry about your eye problems, but I'm glad you don't appear to have other symptoms! It's great that you are starting right away on such a promising DMT (disease modifying treatment or therapy). So many members here are singing its praises! Please let us know how you do with it.

[IFwczs in reply to sski1]

It is absolutely normal they didn't tell you what type of MS you have at the start. It takes time. They will give you a preliminary diagnosis, kike I was told I have RRMS when I was first diagnosed, Five years later (last week), I asked my neurologist, and he said it's too early to tell, but what do I think? I think it's progressive.

[kdali]

Hello and welcome!

The time frame for being able to repair the vision loss from optic neuritis is around 9 months (I learned that from a neurology textbook after weeks of searching for when I should stop hoping my vision would get better 🙄). That said, I’m excited that you are able to get on ocrevus from the start 🎉 and have high hopes that you get something back vision wise! 👀

Run towards it.

Bring your best veins and some music or audiobooks. Be prepared for boredom. Bring a snack. Don’t wear pants that are difficult to get on and off with one hand.

It is new when you discuss MS outcomes and progression, but as far as side effects go, etc, it’s sister drug has been around for a long time and you can look up Rituximab if you are curious about general drug information.

[Jazzihorsecat]

💗A Very Warm welcome to the best Mser Family on the net sski1😀💐🌷🌸 Let us know how it goes! And always remember now you're family here too!💗💐🙏---Jazzy🌹💜

[pamgarner]

welcome we are a great group of people,sorry how you got here,quite an initiation to join this club! I had 3 treatments of ocrevus, doing ok we will see how good on march 11 I have an mri and hoping it has stopped it in it's track. I feel lucky , I went to eye dr yesterday, no sign of ms in my eyes yet.all of my issue is in my legs, feel very lucky not in my hands and arms and eyes, really hope they are helping your eyes.just a very mean disease>urrrgghhhh!

[DIsneyQueen]

Welcome and sorry for your diagnosis. But you will also find many blessings that come with it. Glad you are On Ocrevus. Lots of good results. I have been on it for 2 years. Lots of great advice from previous reply’s on getting the infusion. My 2 cents worth is , once they give you the Benadryl, it will make you tired. Don’t fight it, go to sleep. Also, don’t be surprised if you have trouble sleeping the night you get your infusion. I think it is the steroids that cause it. I sleep great after that first night though. Good luck and God Bless You

[lbenmaor]

I'm sorry about what happened to your eye. Welcome

to our group. This is a great place to ask ?s and learn from others.

Leslie

[hairbrain4]

Welcome and sorry to hear about your eyes. Ocrevus is a good choice. I was diagnosed 14 years ago and have been on several different DMT's (disease-modifying treatments) and Ocrevus has been the best one yet. I have been able to get off of several other medications, my energy and strength levels are up. I pray that your eyesight will be completely restored soon.

[mrsmike9]

Welcome to this band of ragtag people! We hold each other up and cheer each other on! Share anything you like, the good, the bad, or the ugly. Everyone is here for you!