10 Mayb2023 Number 2 I think: G'day RRms... - My MSAA Community

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10 Mayb2023 Number 2 I think

RoyceNewton profile image
6 Replies

G'day RRms (relapsing-Remitting ms) newbies or of course anybody The rule is I have RRms so that is whom I speak to. Do not get upset the opinion may relate to YOU so feel free to read, YOU are allowed to.

ASK QUESTIONS. always ASK QUESTIONS. Things change, opinions change, and ASK QUESTIONS no matter how silly they might be. YOU are disabled now. YOU can not get a firm answer on why or what is my future is, so ASK QUESTIONS and feel free to ask it again.

Do YOU know what your blood pressure is, what was it last week? No, WHY NOT? What your weight is, heart rate. These might be things to know YOU have lots to do, stop crying for a minute and maybe get started. YOU are okay, this illness is doable and YOU CAN DO IT.

Royce

Relax and have a nice day.

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RoyceNewton profile image
RoyceNewton
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6 Replies
twooldcrows profile image
twooldcrows

thank you ...

Frances_B profile image
Frances_B

Royce - having MS does not automatically mean that someone is disabled once they are diagnosed. Many PwMS can live boringly ordinary lives these days with minimal impairments from their MS thanks to the newer and more effective meds, plus the often faster diagnosis for many thanks to improved technologies in the tests used.

So, it's fine to encourage people to ask questions, especially as you often address your posts to the "MS Newbies" but please don't write things such as "YOU are disabled now" when for many PwMS it's not the case at all - writing this sort of thing is not at all helpful to "MS newbies" and can be quite distressing for them and detrimental as they comes to terms with their new view of their world since being diagnosed.

RoyceNewton profile image
RoyceNewton in reply to Frances_B

Of course you are correct, I th9nk I have stated often and clearly enough that I talk to Relapsing-Remitting (RRms) people for that is what I have. Ilnow very little, dare I say nothing about any other form of ms, perhaps YOU could assist those people if they need it. I am sorry but people hubs ms now, so technically they are disabled. 20+ years ago I was grounded and all my licenses were pulled because I had been diagnosed (DX'D) with ms by the rules I was disabled, that is what I mean and I believe that is what I say, no more no less. Try not to catch mr on a bad day I have litle tolerance for some people at times.

Have a good day and be well.

Tazmanian profile image
Tazmanian

What is pwms I have never heard that term before

RoyceNewton profile image
RoyceNewton in reply to Tazmanian

Australian term PWMS person with ms is memory serves me

Tazmanian profile image
Tazmanian in reply to RoyceNewton

Thank you

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