Good morning family. At least it is midmorning for me. The sun is shining, a pleasant breeze. The recycle truck just came so I have to collect everybody’s bins on my street later. Just something I do because I can, I think only a few people know it is me, but I do it for exercise not acclaim. I do a lot of things because I can. I highly recommend that “YOU” do the same. The day may come when “YOU” want to do something but can no longer do it. That is our fate with Relapsing-Remitting ms (RRms). It is progressive, it progresses, downhill over time. RRms does not get better ever. Temporarily a little better, but it is a downhill slope we are on.
This is not something to constantly cry about. More something to be aware of in the back of your mind, and to live each and every day to its greatest potential. Do not be reckless and think because “YOU” are on Disease Modifying Therapy(DMT) “YOU” are not indestructible. Therapy slows progression, NOTHING STOPS IT, only slows it. There is a latin saying “carpe diem”, go look it up. Then perhaps to the best of your ability live it.
Yes, I think about my RRms a lot. How I can move around it., Not let it stop me from doing what I want to do. I am disabled, not dead. This is still my life and I will live it the absolute best that I can. I make mistakes, do some really dumb things, fail heroically. BUT these are things that I do, not RRms. I know my limitations and the consequences I will suffer when I exceed them, but that is life. My LIFE and it will be lived my way for as long as I can. Why do you not do the SAME?
Royce (the ms writer)
Carpe diem for yourself
