why I say the things I do part 2 - My MSAA Community

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why I say the things I do part 2

RoyceNewton profile image
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Because, I may not know "YOU", I probably will never meet "YOU", but I was once where "YOU" are and I really wish somebody has taken me aside and pointed me in the right direction. Yes, a few women gave me a helping hand but I had to learn, learn and learn the nitty gritty strangeness of this illness and how to cope.

ms Societies like to say no two msERs are alike, I beg to differ. My illness is not exactly like yours, but I am pretty sure that "YOU" have been scared, embarrassed, humiliated, confused, just like me. I really have not been angry, angry at what exactly? I never ask why me, it just is because. I try to separate what's happening n my body from me. Look at it from the outside, look at things as if I am looking at me and noticing what is happening, with a clinical interest. I believe this is similar to an out of body or meditational attitude. Look at things and say that is interesting, I wonder why?

We all come from a very curious species, this can be no more than a curiosity. I found pain is easier to handle if I put some distance between me and it. ms is easier to survive for me, if I just observe, try to change my behaviour and learn. Fighting I feel gets you nowhere except tired battered and bruised, but I will never begrudge "YOU" fighting if that is how "YOU" fee must be done. For me observing and managing a little manipulating, are much easier.

Your path is yours, choose to try to walk easily. I wear my depends, I take my Disease Modifying Therapy (DMT), I eat right and I sort of exercise. Maybe that is fighting I do not know.

What I do know is that this is a very very doable disease. Relapsing-Remitting ms can be managed learned about and "DONE", pretty much all "YOU" have to do is make the decision to do it and get started. "YOU" might be scared, medicines may hurt. That is normal, but what is less normal is your dogged determination to be the best RRms person ever. "YOU" have this "YOU can YOU will YOU do" this ms life.

Royce

proudly knowing "YOU"

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RoyceNewton
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5 Replies
Kenu profile image
Kenu

Good post Royce👍🙏🐾Ken

RoyceNewton profile image
RoyceNewton in reply toKenu

Thanks

Juliew19673 profile image
Juliew19673

That was so helpful to read - thanks!

RoyceNewton profile image
RoyceNewton in reply toJuliew19673

That is the reason why I write it, thanks

jackiesj profile image
jackiesj

Ty Royce :This is Hope....to overcome to endure to be...

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