why I say the things I do part 2 - My MSAA Community

My MSAA Community

9,443 members21,230 posts

why I say the things I do part 2

RoyceNewton profile image
5 Replies

Because, I may not know "YOU", I probably will never meet "YOU", but I was once where "YOU" are and I really wish somebody has taken me aside and pointed me in the right direction. Yes, a few women gave me a helping hand but I had to learn, learn and learn the nitty gritty strangeness of this illness and how to cope.

ms Societies like to say no two msERs are alike, I beg to differ. My illness is not exactly like yours, but I am pretty sure that "YOU" have been scared, embarrassed, humiliated, confused, just like me. I really have not been angry, angry at what exactly? I never ask why me, it just is because. I try to separate what's happening n my body from me. Look at it from the outside, look at things as if I am looking at me and noticing what is happening, with a clinical interest. I believe this is similar to an out of body or meditational attitude. Look at things and say that is interesting, I wonder why?

We all come from a very curious species, this can be no more than a curiosity. I found pain is easier to handle if I put some distance between me and it. ms is easier to survive for me, if I just observe, try to change my behaviour and learn. Fighting I feel gets you nowhere except tired battered and bruised, but I will never begrudge "YOU" fighting if that is how "YOU" fee must be done. For me observing and managing a little manipulating, are much easier.

Your path is yours, choose to try to walk easily. I wear my depends, I take my Disease Modifying Therapy (DMT), I eat right and I sort of exercise. Maybe that is fighting I do not know.

What I do know is that this is a very very doable disease. Relapsing-Remitting ms can be managed learned about and "DONE", pretty much all "YOU" have to do is make the decision to do it and get started. "YOU" might be scared, medicines may hurt. That is normal, but what is less normal is your dogged determination to be the best RRms person ever. "YOU" have this "YOU can YOU will YOU do" this ms life.

Royce

proudly knowing "YOU"

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
5 Replies
Kenu profile image
Kenu

Good post Royce👍🙏🐾Ken

RoyceNewton profile image
RoyceNewton in reply toKenu

Thanks

Juliew19673 profile image
Juliew19673

That was so helpful to read - thanks!

RoyceNewton profile image
RoyceNewton in reply toJuliew19673

That is the reason why I write it, thanks

jackiesj profile image
jackiesj

Ty Royce :This is Hope....to overcome to endure to be...

Not what you're looking for?

You may also like...

27 Jun 2023 Hmm it appears that I can't or shouldn't say certain things

G'Day fellow Relapsing-Remitting ms (RRms) family members, especially YOU newbies (Newly...

Part 5 "THE MENTAL GAME"

Yes, this is very important. There is a mental game in this illness, and it is very important....
RoyceNewton profile image

ms, Do not ask WHY, ask HOW

msERS, good morning. As YOU sit there in your misery, anger, or any other emotion, my suggestion...
RoyceNewton profile image

why do you care what anybody says?

Why do you care, seriously why? Is there a good realistic reason? I do not know them or why...
RoyceNewton profile image

fear

There are things to fear and things and there are things to manage. I would suggest that...
RoyceNewton profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.