2 Feb 2023 Not Doctor: G'day ms family... - My MSAA Community

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2 Feb 2023 Not Doctor

RoyceNewton profile image
19 Replies

G'day ms family. Just to make certain. I am not now, nor have I ever been a medical professional of any sort. The things I may say are my opinion and my opinion only. Do not take what I say as something that YOU must do, merely as an option from somebody who has played the Rlepsing Remitting ms (RRms( game for over 20 years. Not sure exactly as it is not that important to me, and is a very firm believer in Disease Modifying Therapy (DMT).

I hope I am clear. Now go out and have a nice day. Be easy on yourself and try to forgive others. They do not know any better what is going on with YOU. Perhaps they are trying their best as well.

YOU are loved and cared about.

Royce,

your ms Writer.

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RoyceNewton profile image
RoyceNewton
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19 Replies
NorasMom profile image
NorasMom

Thank you, Royce! I am trying to be happy today. I have a large roaster full of chicken, potatoes, onions, and cabbage cooking in the oven, and I plan to have plenty of leftovers even after feeding my son! It was 13F when I fed the birds this morning, so I won't be going outside again.

falalalala profile image
falalalala in reply to NorasMom

What time's dinner?:D

NorasMom profile image
NorasMom in reply to falalalala

About 90 minutes from now. All are welcome. I never could cook for just one or two people!

falalalala profile image
falalalala in reply to NorasMom

I think you're awesome!:)

NorasMom profile image
NorasMom in reply to falalalala

Thank you, but this will be the only time I cook this month. 😜

falalalala profile image
falalalala in reply to NorasMom

Well, you've got me beat!😂😂

NorasMom profile image
NorasMom in reply to falalalala

lol. I figure there's a reason God invented Campbell's soup and microwaves.

falalalala profile image
falalalala in reply to NorasMom

:D

DM0329 profile image
DM0329

Great to see you Royce! Thanks for sharing such a great post with us, as usual. 🙂🙏👍

Cwright170994 profile image
Cwright170994

Good morning Royce!! I say good, but it isn't over in North England, bit rainy today 🤣 not surprised though, had almost dry conditions the past couple of days 🤷‍♀️ and same, tried doing a nursing degree and had to drop out at year 2 semester 3 😕 not necessarily ms related, but the stuff I learnt has carried over. Near enough to the point where my soon-to-be husband and friends know who to get in contact with regarding health problems! They remember the time where me, my partner, and his best friend went to the pub one night, and on the walk home, his friend had a seizure! Thankfully, he is known to have them anyway, but that night I switched from tipsy me, to nurse me, in an instant! 🤣

I, too, am an advocate for dmt's. I've been on ocrevus since July 2021 (after being on copaxone since diagnosis), and my mri I had last Sept didn't reveal any new lesions!!! I'm so happy about that news!!!!!! 👐👐👐 just need to heal the ones in my head now 😅

RoyceNewton profile image
RoyceNewton in reply to Cwright170994

glad to hear that you are well. If you find a way to fix lesions feel free to let me know 😆 have a good day

Cwright170994 profile image
Cwright170994 in reply to RoyceNewton

Ooh, I'll let everyone know!!! Definitely!!!!!! And you have a good day yourself ❤️

Cwright170994 profile image
Cwright170994 in reply to RoyceNewton

I believe that, if you let your body do its thing, you can heal lesions. I've compared my 1st MRI with the MRI I got when I had to start ocrevus, and I've noticed the lesion from my 1st MRI has started to disappear 🤔 I do know you've got stem cells already, called oligodenrocytes, that help repair the nerve cells when they've been damaged 🤷‍♀️

RoyceNewton profile image
RoyceNewton in reply to Cwright170994

Keep up the Ocrevus and stay positive, good luck.

Cwright170994 profile image
Cwright170994 in reply to RoyceNewton

Thank you!!! And I am doing!! My last mri didn't show any new lesions!!!!! 🥳💃 I'd only had 4 infusions (the starter ones counting as separate infusions) and I'm feeling so happy in myself 🙌🙌

hairbrain4 profile image
hairbrain4

Being kind to others is also healing for your self. I agree with being on a DMT, they're not a cure but will help slow progression.

Tazmanian profile image
Tazmanian

You will never know if your dmt is working or not until you stop and then it's too late

RoyceNewton profile image
RoyceNewton in reply to Tazmanian

there is always competitive MRI But in a sense you are correct.

twooldcrows profile image
twooldcrows

yes i agree just enjoy life ....love and happiness...laughter is great ...smile...welcome back home ,hope your trip was great and had an enjoyable time ...

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