Somebody asked this of me, I do not remember who or where the post was. That is pretty typical, isn't it? ms is so annoying like that, I really should take better records and clearer notes. I know better but sometimes, well YOU know what I mean.
In our ms journey we always have to be selfish and look after number one. This NEVER EVER gives us an excuse to be rude, we are far better than that. But what can we do?
For myself, I use my scooter or a cane when it is convenient. I have still some silly pride that causes me to get myself in situations that I really should not get myself into. I try always to control a conversation and be polite. It costs me nothing and I can present my case in my words.
"Hello ?, how are you today?"
whatever their answer is followed by an opportunity for me to say my condition is very odd. One minute good one minute bad and it just keeps changing. I am confused, but then so is everybody else, including my Neurologist. it is a very confusing illness. Just imagine all the roads in someplace and one random spot has potholes. They get fixed but that road is never the same again. That is us. So, unfortunately, I can never ever be 100% relied on, as hard as I will try, and I will try my best, always.
Be the first to admit your weakness. Show your strength by saying YOU will try, and leave yourself an out by saying how your illness and condition are so very variable, that as much as you want to help, but YOU may not be able to.
It all comes down to protecting your most important asset, YOU. it is rather a challenge and it really does change, but YOU really can find away through this maze that we call mslife.
Control your surroundings, manipulate and adjust yourself, always be, like BAMBOO, then come back stronger do not be rigid like old oak trees. Being rigid hurts.
Bending and flexing always.