I often jest with people stating my husband of 41 years and I are a power couple. He’s had more than of his share of medical issues really since we first got married. He latest 10 years now is Parkinson’s. What I have learned about Parkinson’s is it is one scary disease. But here is the kicker Parkinson’s in my opinion worse side effect is depression. The man I shared my life good times and bad is chronically depressed. He lives like a man almost 60 years old waiting to die. I feel awful for him, so many drugs for so many conditions so many that they physically make him ill. Me I’ve been very fortunate until 2018 diagnosis with RMS. His depression is impacting me to the point where I’m wondering would I be better off alone. Here is this poor man suffering - sees all types of doctors and wants to do NOTHING every day. Not only did I lose my dear and closet friend our laughs over our kids our grandkids but he’s become almost impossible to live with. We are waiting for yet another couples therapist poor dr has no idea what they are in for. I want to run and live alone, pick up after me, do what I want to do. How bad of a wife can I be 41 years and I want to run away. I pray there is a solution we can both live with because right now we are one pitiful couple.
Diseased Couple: I often jest with people... - My MSAA Community
Diseased Couple
Care taking is a hard and stressful job and then being sick yourself is even harder. Sometimes people forget about the other half and it’s all about them. I can totally see where you’re at. It gets old being the only one doing everything and living with a depressed person. Maybe it’s time that you start doing a few things for you. Maybe you can get some help to come in and take the load off of you. Give you some time to your self. My best friend deals with this all the time but he finally has someone to come in a couple days a week and bath his wife. Another gal comes in once a week sometimes twice to handle medical problems. Just some little things easy the pressure. Take care and I hope you can figure things out 🙏😉🤗 Ken 🐾🐾🐕🦺
I'm really sorry to hear you are struggling. Maybe the therapy can help you both. I think at times these feelings can be normal of thinking to run. That life will be better. But it may not actually be greener on the other side and like you said he was your best friend. And it seems like he's struggling too. Maybe the doctor can adjust his meds. Best wishes to you.
I'm sorry to hear that you are going through this. Maybe some therapy for yourself is in need so that you can how best to take care of yourself. I know that there is some good info on the Michael J Fox Foundation site: michaeljfox.org/news/care-p...
I have nothing helpful to add, and I’m sorry you are going through this. It sounds lonely and scary 😭 I hope the visit will help. Perhaps there’s some in home care that he qualifies for to ease your burden. 🙏
sorry to hear what you're going through
🙏🏾
Investigate the social service and senior options in your community for Parkinson's patients. Perhaps there is in home care available for him a few days each week, or housekeeping services for you to lift the burden. If you have a church family, perhaps someone can volunteer to come in on a schedule to allow you to leave for a long walk, a class at the Y, or coffee with a friend. Take care of you, because if the captain goes down, so does the ship. Keep us posted on what you find. We're with you in spirit, all day, all the way!
My mother in law had Parkinsons for many years before she died from it. She was very independent, lived by herself as her husband passed many years prior, but found an independent living facility with options for additional aid as required which came in as essential with time. It may offer both of you a better life with a community like atmosphere. More events and socialization than either of you may want, but all right outside your door. Maybe you still want to go, go, go, While he's content to simply sit and watch. Maybe the change would be good to liven you both up? Wishing you the best.
I agree with Mark Up North. Of course, it is not always an affordable option. But I had a dear friend who had to put her husband with Parkinson’s in an assisted living situation. He actually thrived. She was able to do some things outside the home which helped her mental health tremendously! Please keep in touch!
I agree what many others here have said. Also if you have a good friend that you can go to lunch with or even talk with on the phone is often a good getaway. I read a sign at my Dr’s office yesterday that said to please bring positive energy into the office if possible because the negative energy affects yourself, patients, caregivers, medical teams, and staff. Something like that, i wish I’d taken a picture of it. Of course the dr’s office is in New Orleans so maybe there was a lot of negative energy around from the recent hurricane (and current hurricane that has now switched course to pretty much go over n.o. in the next couple of days). Prayers for your mental health (and both of your physical health).
Is there anything he can do to help someone else? If I'm feeling depressed and I have the opportunity to help someone else, it helps. I think it makes me feel like I have value.
I am so sorry for both of you...
I saw my MS dr today she is putting me back on something for anxiety. My husband depression keeps him from doing anything enjoyable or anything if I don’t go with him. I still work full time I have been a telecommuter for over 10 years. I have my office he sits and watches TV. He loves to fish, hunt many things but has no friends and Parkinson’s makes both almost impossible. To make matters worse we had to move his parents from their mountain home to assisted living near us. Covid kept us from visiting them, he’s dad stopped eating, fell and passed away in January. It’s a wonder he is depressed. Hell of a mess huh? Feel like I am watching him slowly die, his drs know how he feels and asked me to come to his last appt. hopefully they will help him. Thanks for listening. Peace
let us see what we shall see ... MERRY CHRISTMAS
June 4th Hug your cat day!
Asking an Ms patient for Divorce 
B12 has any one been helped by it?
