MS Relapse : In honor of Multiple... - My MSAA Community

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MS Relapse

nicoly3467 profile image
7 Replies

In honor of Multiple Sclerosis Awareness this month, I wanted to share where I’ve been the last 2 weeks. Surely, no place fun.

I had a severe MS Relapse and I was in the hospital for 6 days receiving a daily IV dose of steroids to cut down on “inflammation” attack on my nerve cells in my brain 🧠 to slow down further disability. I came home last Friday. All it takes is one relapse to cause permanent disability as you all know (blindness or other vision issues, speech problems, trouble walking or paralysis, etc.) and I’ve had many relapses in my 8 years dealing with MS.

I call this-The Real Deal of MS. It started a month ago with blurry eyes one day that lasted for over an hour then suddenly went away, that’s usually my first sign that a relapse is brewing, then as a few weeks passed, I became physically weaker, to two days before ER-the entire right side of my body became numb, including right side of my face, arm, hand, hip, leg and foot. On day right before I left for the hospital, I was so weak that I was almost going to pass out. This was scary and I knew it was time to go to ER. If I waited any longer, 911 would be called, which I did before a handful of times. I never know when the Dragon 🐉 wants to make his final debut. Sometimes it can be worse and I’ve surely been there before with paralyzed legs or having trouble talking. This relapse is very bad.

Here’s a pic of my Covid ER room with solid door (no curtain) and my Vans shoes and pics of my hospital stay. I’m starting a Home care plan for physical therapy, occupational therapy and speech therapy at home as advised by the Doctors at the hospital. It’ll be a long recovery and it has been very hard on me. I am still hopeful though and I know God is looking out for me.

“Keep fighting MSer Friends 🥊!! Thank you to ALL of you for your support, advice, prayers, encouraging words and jokes the last few years. You’ve been awesome!

This is a pic of me on Day 3 in hospital. Before and right before I was discharged I took another pic.

In next post. I thought it’s important for anyone with MS, Caretakers or loved ones to see the real deal.

Nikki 🌼

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nicoly3467
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7 Replies
jimeka profile image
jimeka

Nikki, I love your fighting spirit, you certainly are an encouragement, even after all you have been through. Thank you for sharing as it may help someone else. 🙏 Jimeka

nicoly3467 profile image
nicoly3467 in reply to jimeka

Jimeka-thank you for your kind words.

kdali profile image
kdali

Ty for sharing the real deal 💐

twooldcrows profile image
twooldcrows

love the spirit of your fight to not let this dragon as you call it not stop you ....fight hard to get back to being where you want to be ...staying strong and living the way of life that you are meant to be and do ....fighting warriors spirit ....keeps on keeping on....love and much happiness ...

Midgey_Midge06 profile image
Midgey_Midge06

Yes you are correct. People need to see how real it can get. My sis still thinks i am faking my disease. Little does she know!

rjoneslaw profile image
rjoneslaw

keep fighting

kdali profile image
kdali

How are you feeling now?

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