As you all might have noticed (or not) I had to quit posting again. I had a relapse last week--not just a flare, but a real relapse that required a $40k vial of Acthar injections and has left my legs and hips in so much pain I don't know what to do. I have been trying to exercise to start coming back again but the pain is so horrible I can barely walk and I can't move at all without my walker. I have my brain, C and T spine MRIs this coming Thursday and then I see the neuro next week. Wonder if they'll show any progression...am hoping not. Hoping all is well with everyone else.