OK, I have been putting off putting this out there because, well I think, no I know, that I have been in shock.
Last month I went back to the MS specialist. I have known of him for around 20 years, he was my husband and son's Muscular Dystrophy doctor many years ago, before he went into MSsome years ago. A very good, compassionate, up to date on the MS info kind of doctor. I was in his office, he came in, sat down beside me and said, "Lynn, you do not have MS". To say I was shocked was definitely an understatement! He says that he, and other neurologists, have seen this many times before, and they do not know what it is exactly but, it should not cause my disability to worsen. He said that the 4 or 5 lesions, or what many other neurologists have called lesions for the better part of 40 years, are not lesions but he cannot tell me what they are. He said that he, and other doctors, call them "unidentified bright spots" when they have seen them in other patients.
He said that he believes everything I tell him, this is not an issue of my trying to pull the wool over everyone's eyes, nor is it all in my head, but it is not MS.
I asked him what I should call it then and he laughed and said that he calls it "benign weirdness".
So he is treating my symptoms as if I had MS and is continuing to be my doctor.
I truly do not know what to think!