In honor of Multiple Sclerosis Awareness this month, I wanted to share where I’ve been the last 2 weeks. Surely, no place fun.
I had a severe MS Relapse and I was in the hospital for 6 days receiving a daily IV dose of steroids to cut down on “inflammation” attack on my nerve cells in my brain 🧠 to slow down further disability. I came home last Friday. All it takes is one relapse to cause permanent disability as you all know (blindness or other vision issues, speech problems, trouble walking or paralysis, etc.) and I’ve had many relapses in my 8 years dealing with MS.
I call this-The Real Deal of MS. It started a month ago with blurry eyes one day that lasted for over an hour then suddenly went away, that’s usually my first sign that a relapse is brewing, then as a few weeks passed, I became physically weaker, to two days before ER-the entire right side of my body became numb, including right side of my face, arm, hand, hip, leg and foot. On day right before I left for the hospital, I was so weak that I was almost going to pass out. This was scary and I knew it was time to go to ER. If I waited any longer, 911 would be called, which I did before a handful of times. I never know when the Dragon 🐉 wants to make his final debut. Sometimes it can be worse and I’ve surely been there before with paralyzed legs or having trouble talking. This relapse is very bad.
Here’s a pic of my Covid ER room with solid door (no curtain) and my Vans shoes and pics of my hospital stay. I’m starting a Home care plan for physical therapy, occupational therapy and speech therapy at home as advised by the Doctors at the hospital. It’ll be a long recovery and it has been very hard on me. I am still hopeful though and I know God is looking out for me.
“Keep fighting MSer Friends 🥊!! Thank you to ALL of you for your support, advice, prayers, encouraging words and jokes the last few years. You’ve been awesome!
This is a pic of me on Day 3 in hospital. Before and right before I was discharged I took another pic.
In next post. I thought it’s important for anyone with MS, Caretakers or loved ones to see the real deal.
Nikki 🌼