This week started off fairly well, only for it to start going downhill from Wednesday. I woke up not being able to bend or mice my right leg, so there I was, worried that I wouldn't be able to get to an appointment at 9am at a small hospital in the town next door. I called up 111, and they suggested that I go to an A&E at a couple of hospitals in Manchester I've never been to before! I asked if going to Salford Royal would be alright, because it's my neuro hospital, and they said it's fine. Then, at 8, I got a call from the small hospital, telling me that the doctor that was seeing me had called in sick, and they couldn't get another one in quick enough! That was fine, I don't need a taxi. My husband took an "emergency" day off from work to get me to A&E. His manager understands how he's a technically unpaid carer for me, and so it doesnt bother him. We went to go have breakfast somewhere (I paid) before we drove to Salford Royal. That was a long day! Husband had to wheel me in my wheelchair, and we waited quite a few hours before I finally got called in to be seen by a doctor. I was able to start bending my leg not long after being called in. When the doctor saw me, he did the whole reflex test on both of my legs, and was thinking of putting me on methylprednisolone* , until he looked at the notes my neuro had put up about him banning me from steroids unless with with my ocrevus. But, he had seen that I had an MRI recently, but the findings have not yet been put up. He also saw that my neuro appointment was at some date in October! That angered him, so he got my appointment moved to this Friday coming. I had organised a lift to/from Salford with his dad that morning! Thursday rolls around, I'm feeling like I'm at death's door with a cold. When I video called mum, she instantly knew I was sick because of how flushed my cheeks were. That's fine, my carer still came round on both Thursday and Friday. I told her to mask up on those days, not wanting to give her my cold. On Saturday, husband asked me if we should get a covid testing kit because I was coughing quite badly. I thought, "you know what? Yeah, lets rule that out." So, we go and get them, and we were both shocked when the tests came back positive! It was such a good idea I had when I told us to mask up to get them! Then, at about 5ish, I felt a leak coming from my urethra, knowing it shouldn't have happened with me being cath'd up. So, called up the out-of-hours district nursing team, and they suspected I have a UTI. So, they put me on the line to a health centre that does weekend appointments, but it still has a 24 hour call centre. I explained everything, and the person confirmed what the nurses had put on, and got me booked in for an appointment at 8 this morning. That would have been easy to wake up for if we'd had a proper sleep last night, but we were both able to finally switch off at half 11, go to bed, and then we both struggled to sleep 😔 it was good that I'd put an alarm on my phone, because I don't think I would have been fine with the whole "wake up, check time, immediately fall back asleep" trick. But, half 6 comes around, I think I woke up 5 mins before, but it was nice to have an uninterrupted cuddle with my sleeping husband until an alarm goes off. When the alarm went off, he rolled over to check, confirmed it was time, before rolling back over to do his normal wake up stuff. I, on the other hand, went downstairs, made us both a morning cup of tea as a start to our day. Next, we're off to that health place to see a doctor. He was about to ask me to take a sample pot and pop to the bathroom, before remembering I have a cath bag on. Husband did the duty of opening the port and getting some urine into the pot. The Dr dipsticked, saw there was definitely results for an infection, and wrote me a prescription. We then went to a chemist that's open every day. I handed the prescription over, and when the chemist asked me to sign, I was like, "I can't! I have covid and I don't want to spread it to you!" The chemist signed it for me, and she also gave me a free bottle of alcohol gel! We came home, I took an antibiotic and went to bed for a nap. Husband has managed to stay awake, somehow, but I think it's because hes been playing on the xbox.
Did tell my mum of both updates, and she's made me laugh 😁 I also let my carer know, as well as the care company so they don't schedule my carer in for my visit. It's currently 5pm, he's just finished doing a weekly deep clean, and he's going to be cooking sausage, egg, and chips/potato waffles for tea 👌
*edited because someone pointed out a mistake in the drug my current phone autocorrected 🤦♀️
I have PPMS.
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