I take stock every year of what I've lost since the previous year. It's been 20 years since I noticed the progression, but ignored it for years. I was an avid golfer. I first noticed that I couldn't hit my 6 iron (favorite fairway iron) like I used to and used to joke that I must have some disease. I relized my problem was serious when I began to walk differently and started to fall for no reason. After seeing 6 different (so called) nurologists who diagnosed me with ALS. I finally saw a 7th and 8th at Penn who understood my disease as MS.
As of today, I am wheelchair bound and have lost most left side function. I get mild to severe vertigo. My wife and I work together to dress and bathe me. Other than that, we are happily married for 51 years.
I don't go out any more because retro toilet facilities, ramps and doors are, for the most part, not per AWD standards.
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Welcome to the forum, MrB51 . Yes, it has been almost 20 years since I was diagnosed. It took me about 10 years to get diagnosed. I get by every day but things progress slowly. No exacerbations as I have PPms. I look forward to hearing more from you. In the meantime, please visit mymsaa.org for resources to help you manage your ‘ms’. Keep Smiling, my friend
Welcome Mr. B51!I used to hit golf balls with my sweet father and at one point played a pretty mean game of putt putt.. The closest to real golf I ever played was par three in lMyrtle Beach but I really did enjoy that! There are a lot of nice people on the site who are kind and funny… They often make you smile!
Hi MrB51, and welcome! Sounds like you had some very difficult challenges getting diagnosed correctly. I am wondering, after 6 neurologists said it was ALS, what made you keep seeking additional opinions? Good for you for not giving up until you were satisfied that you found answers. And congrats to you for 51 years of marriage! That is quite an accomplishment. 🙂
I said I wanted the opinion of someone at the top of the field. He turned out to be a Penn neurologist. After testing, he called with the news. Instead of a death sentence with ALS, I had MS. He sent me to another Penn neurologist who became my MS doctor and a trusted friend.
I was olnce able to golf a round at 75, then a second 75 for the back nine. Still, it was great to get out in the open for a long walk and enjoy the scenery. With the slow progression of MS, I can't even plat putt-putt anymore, but I still enjoy the open view of our backyard, Everyday life can still be enjoyable, even with MS.
Okay, I gave up golf not because I couldn't physically, I never had the time working 80 hour weeks for decades. Forget the golf for a second. Look at what you have gained after loosing it to M.S.!
I'm still going with M.S. for over 30 years now. I can again walk, not run, but walk, UNASSISTED AGAIN! Okay, handrails on stairs, a definite do them. The power driven lawn mower is a fantastic power walker that let's you accomplish the lawn work! Who would have thought you'd ever like mowing the lawn again? Or be controlled by a wrist step counter?
I am on no meds anymore. Do the healthy eating thing. And avoid all processed foods. Still working on the very long list that came with my M.S. package.
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PPMS Suffers
I am here to learn how others cope with the everyday living of MS.
Post 642 I have been scared 8 May 2020
Hello everyone
