G’day (Hello) my beloved ms family, all are well I hope. I slept well enough last night. A little scared about trigeminal Neuralgia coming back. Its last visit was very unpleasant but like everything ms. It comes, it goes and I carry on. “YOU” do as well. “YOU” carry on,” YOU” do not give up. Surrender to this condition. Wallow in pity and tears in your dark corner. No that is NOT “YOU”. Horrors, embarrassment, pain may strike, but “YOU” overcome. At first “YOU” may not think “YOU” can. At first “YOU” may cry, I certainly DID, but give yourself time. Take your Disease-Modifying Therapy (DMT), realize it is slowing your illness. Realize that there is nothing beyond “YOU” if “YOU make a serious effort and try. Yes, this is Relapsing-Remitting ms (RRms) there are things that “YOU” can not do. There are things that “YOU” should not do. I will never fly again, my driving is limited to the mailbox when I am lazy, there are other things. Yes, most certainly I miss them, as “YOU” will as your years pass. This loss does not mean that I am less than I was. Something to be coddled and pitied. Ignored and hidden away.
NO, I will not let that happen and neither should “YOU”. Wear your disability with pride. If “YOU” can flaunt it. Be garish, honour what “YOU” go through. At the moment after my last falls, my Doctor ha recommended a walker or a chair in public. I like “YOU” am having emotional difficulty with this, but, if I must I will make it so individually me everybody will know it. There is no need to be ashamed or embarrassed. I did nothing to get this illness. I will do my best to live it my way, as should ‘YOU’. The T-shirt says ”I have ms, but ms does not have me”. What better way to slap ms down but by taking control of my disability my way. It has taken over 20years for a doctor to recommend a walking aid. I have had many goodish years as will “YOU”, but maybe when the time comes. Fighting is not the best option. Accept the change, but accept it YOUR way, not on somebody else’s timescale. Your years are yours, your RRms is different to mine it is all yours. Live it well, YOUR way. Decide that “YOU” may have ms but this long journey is going to go the way “YOU” want. Believe in yourself, always believe in yourself. “YOU” can live this ms life. Put aside your fears, your doubts. It may take a little (LOT) of patience and effort, BUT “YOU” can do this. Your ms may be uniquely yours but this ms life is ours. Others have done it and so will "YOU" so wipe away your tears for a little while and start LIVING YOUR mslife. YOU CAN DO THIS msLIFE.
Royce (your writer and brother)
I am nobody special, if I can so can YOU
