G’day (hello) my much beloved ms family. I hope “YOU” are well and happy, at lest content with your life today. At 700 numbered posts I thought I might stop, but I guess it did not happen that way. Like our ms life journey it is full of surprises and changes of plan.
I will try hard to make this pertinent for our very new family members. As always those people are my priority. I asked questions long ago and it took me a long time to find answers. I did find that asking directly, people with ms to be the best option. Regular ms sites like msAA and National ms society are the best sources of information in the United States. Other national organizations are also goode. msWorld and ma Australia come to mind. I feel after learning the basics then looking at the the more unconventional sites is okay. “YOU” have to realize that there is NO CURE. NOTHING WILL MAKE THIS GOAWAY. There are a number of treatments, these are called Disease-Modifying Therapy (DMT).
Read that again, modifying not curing there is no cure. They were meant to lessen the amount of exacerbations that “YOU” may have annually. Not a big percentage, “YOU” may still have attacks, episodes, exacerbations. This is normal, without DMT “YOU” may have had more. I highly suggest taking the “STRONGEST” medicine that “YOU” can legally take for your situation. I believe for Relapsing-Remitting, today it is called Ocrevus. For other forms of ms, I am not sure I have RRms and that is what I speak about.
That should make your life easy “YOU” now know several things. Ask questions, talk to people who actually have the disease, take the strongest DMT that “YOU” can, there is no cure. CRY, it is okay to CRY I HIGHLY RECOMMEND IT. Your life is not over, this disease is not fatal. It is chronic, it will have its ups and downs. It will last your whole life. Again there is NO CURE. This does not mean your life will have no joy, happiness. I know of several people with ms who have found very deep love, several who have had children. There is a future ahead of “YOU”, this is not the time to give up.
Put your determined hat on, shoulders back stand up straight. Look your future in the eye, smile and say to yourself. I may have RRms but it does not have me, I may be a little battered and shocked, but with a smile on my face I can live this ms life, and I can live it well. Ask questions.
Royce (your ms writer and brother)
20+ years and still going
