G’day (hello) my beloved ms family. As always I hope “YOU” are all well and had a good night's restful and rejuvenating sleep. I am not sure who this is for today, I guess if it is for “YOU”, “YOU” will know. So here we go, take a seat relax, and read on.
“YOU” have just been diagnosed with Relapsing-Remitting ms (RRms), or “YOU” have had it for years. It really does not matter which one. “YOU” have to find a purpose for getting out of bed each morning. We all have many years with this condition. Remember it is incurable, it will never go away. By taking our Disease-Modifying Therapy (DMT) we are only slowing ms down not stopping it. That can NOT be done. Not yet anyway. “YOU” need to give yourself direction. Any direction, and “YOU” need to start moving. Letting yourself just stagnate and pity yourself will lead to nowhere good. Take what “YOU” had and redirect it. If “YOU” had no direction just pick one and start moving. Do not expect to give yourself a step by step 50 year plan. ms may play games with your body and the change of direction may be difficult. If not very expensive. Being open to a change of direction will help “YOU” so much. I know that I have walked down many different paths in my twenty plus years. Okay, stumbled more so than walked. I held onto my flying for years, I thought I was a pilot. At least not a very good one looking back, but I thought that was my direction. I have tried other things and I likely will try more. This is not a nine to five paid job. This is our life, we are here to live it and learn from it.
in reality, I feel our direction is not hard. Do your best to live. Live your life the best that “YOU” can. Experience all that is within your reach. Try a little harder and reach a little further if “YOU” can, who knows what “YOU” might achieve. If “YOU” fail, at least “YOU” tried. Never give up on yourself. What others might say, the limitations that they put on “YOU” are NOT yours. “YOU” my ms sibling will go as high or as far as “YOU” chose. That “YOU” have a chronic progressive incurable disease is NEVER EVER a reason or excuse to hold yourself back. Achieve the greatness that “YOU” were meant to achieve. It may not be writing a 652-page book, running a 5-minute mile or 9-second 100-yard dash. Achievement may be getting out of bed, or not urinating upon yourself, too much. There is no rule, there is no goal post. This is ms and you choose your goal post. Move it in closer when “YOU” need to, further away, whenever “YOU” can. Go easy on yourself. I give “YOU” permission to succeed spectacularly and too fail, even to cry. It is okay, I will not think less of “YOU”. Do not let anybody think less of “YOU”.
This is your life. Your journey. “YOU” make the rules, “YOU” decide success or failure. The outcome is yours. Be happy and content with that. Somebody else’s goals may just lead “YOU” to sadness. “YOU” are meant to live your best life, whatever that may be for “YOU”.
Royce (your ms writer)
I think I might want to see what is at the other end of a rainbow, what about “YOU”?
