Good Sunday morning my beloved ms family. In case “YOU” are new or uncertain of whom I am talking take a look in the mirror, that smiling face is who I am referring to. “YOU” are smiling aren’t “YOU”? Okay, if not smiling not grimacing. The aim is to calm your life down. To make “YOU” feel that “YOU” are in a constant never-ending unwindable battle against this monster (ms) I really dislike that term, monster. Years ago in Australia they had an ad “ms the mystery disease” I did not like that then but over my 20+ years I have come to appreciate that statement. A mystery disease, NOT a monster that I must battle, I am not a warrior just a person caught up in this huge ms mystery.
Where did it come from? an ms mystery
How do I stop it? an ms mystery
How do I make it go away? an ms mystery
Yes, a disease full of mysteries, not a monster to fight and battle. A lifetime of fighting myself. That is no way to live. I feel it can only lead to heartache and loss. Fighting something that I do not fully understand. Fighting something that can and does run circles around any of my moves. NO, I feel that it is much easier to be in a mystery, try to understand and thwart a mystery disease. The questions that I ask myself are an ms mystery. I am searching for clues (sorry Robert palmer, song). Will this Disease-Modifying Therapy (DMT) reduce my relapses? Can I cope with 6 monthly infusions, Ocrevus, (Benadryl) or will a take a less effective tablet? (I do, Tecfidera). As I have said, nothing will cure “YOU” or I. Exactly what to do is an ms mystery. Cry when “YOU” need to, but look at it as an unfathomably ms mystery. Search for answers, search for new questions, keep searching. I feel it is much easier to search than to be a warrior. Be your very own seeker of the answers for your ms. We are told that we are all different, so how can one person's answer be the answer to all your questions, and accept that some questions are an ms mystery.
Prepare yourself mentally for this very long journey that we are all taking. Do “YOU” remember your Gringotts treasure vault? The place where “YOU” put all your victories and good memories. Keep filling it. These items are your body armour against the attacks of ms. “YOU” got through it once, if “YOU” did it then “YOU” can do it again, and again. It can not beat “YOU”. Your ms mystery can be solved. A happy and reasonably contented life can be yours. Merely keep yourself looking for the clue that allows “YOU” to make it happen.
ms does not have to be a huge battle. One which believe me, “YOU” will lose. “YOU” are okay, “YOU” understand that this is just a huge ms mystery for “YOU to find your solution too. Accept the failures, adapt when “YOU” can. ms can be lived with. A brighter not sunny, but brighter future can be yours. DMT is your first step, the strongest medicine “YOU” can get. Ocrevus until somebody tells me differently.
Royce ( your ms writer and brother)
You can do this, be strong and believe in yourself always
