Good Saturday morning my beloved ms family. All is well, “YOU” got a good nights sleep. It is a little chilly for my liking, but I live in the desert so much below 70F 21 C , not exact and I am starting to get cold. I just wish the weather would say the same, but that is the planet I live on and that is what I get, no use in complaining, but I think whining about the weather is allowed, and normal. Whining about ms stuff is strongly discouraged, by me anyway. Do something to fix or moderate your ms problems. If “YOU” can not, perhaps “YOU” have to learn to accept them. Over my many years, I have learned to accept many things. Every other day needles, I am quite a scaredy-cat when it comes to needles. Magnetic Resonance Image tests MRI’s) here it turns out I am claustrophobic. People having a different opinion to me or knowing more than me. Hurts my ego, but this is life, life with ms. Maybe just life. There is no need to be hurt or respond angrily. The person on the other end of the post may be having a difficult day. They may be upset about something. Your spouse may be angry. Do yourself a favour, take a step back and calm yourself. Be the first to apoligize, and mean it. Sometimes it takes a lot of a person to have with a chronically disabled partner. Not everybody can do it. Perhaps that is why our divorce rate is so high. If “YOU” find a partner who will share your life and put up with your ms issues, cherish them and remember to cut them some slack. As “YOU” ask for slack to be given to “YOU”.
On to our newly diagnosed (newbie) journey. Firstly, “YOU” are going to be okay, secondly “YOU” are going to be okay. Thirdly, fourthly etc, do “YOU get the hint? I understand that this can be a shock to the system, a major wrench thrown in your planned life, but “YOU” can handle it. Take a little time. Do not try to solve or plan for your life in 5 minutes. Your Disease-Modifying Therapy (DMT) should be the one that reduces your elapses most. Ocrevus in my non-medical OPINION, but do discuss this with your Neurologist (neuro). Avoid all the miracle cures on line. They are lying to “YOU, feeding “YOU” false hope. Taking your money. Maybe try them later but not at first. Clean up your diet, there is no perfect diet for me but sausages and chips will clog your arteries and maybe even kill “YOU”. Next, I know it is dirty word but I am going to say it anyway.
EXERCISE. It does not matter how, but “YOU” have to exercise. Move your body. There are a number of sources that “YOU” can use. The ms Gym springs to mind first. Very good info and they have a lot of experience with us, people with ms, I am sure there are others. There is a lot of good information out here. Of course there is some REALLY BAD stuff as well. Some are well-meaning but WRONG and some are just trying to take your money. Be a bit of s cynic, not a victim.
MSAA.com and NmsS are pretty good resources. Make use of them and get to know your disease and what it MAY mean to “YOU”.
Royce (your ms writer and Brother)
ms does not automatically mean disability, YOU can do this just be smart
