new guy: Hello, I am new to this site and... - My MSAA Community

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new guy

efftee profile image
16 Replies

Hello,

I am new to this site and not sure how it works so I will just throw some things out there and see what happens. I was diagnosed in Feb 2007 with PPMS and my life was turned upside down. I was a 60 year old male at the time and MS should have left me alone, But it didn't and now I am a 72 year old male living alone in San Diego and unable to play tennis and golf like the old days. I still get out and about pretty well, stores, ball games, casinos, etc., but it can get lonely at times and I miss good conversations. I lost a brother and two close friends this year and I have a need for more friends. I would love to connect with other MS people in San Diego and I don't care about your age, status, gender, or anything. I just want to talk and compare notes about life with MS with someone who knows exactly what we are experiencing with MS.

enjoy your day,

Efftee

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efftee profile image
efftee
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16 Replies
jimeka profile image
jimeka

Hi and welcome. I too have PPMS but sorry I live in the U.K., but I am open to any conversation and questions you may have. You will find on this forum we talk about anything, we laugh, vent, cry, share hobbies, photos, anything really and jokes, as long as they are clean. We all have ms, but we are all different, but we all understand each other. We also share lots of good information about ms, the latest trials, etc. A few of us are trying cocoa, to see if it helps with fatigue.Also there is a free university course with the University of Tasmania, all about ms. It’s actually quite good. Anyway feel free to post or comment on a post, as Jazzihorsecat says, you are family now. Blessings Jimeka 🍫

Hooverd65 profile image
Hooverd65 in reply to jimeka

Hi and most welcome to site.

Im in Central CA,I'm 54(F) been with my wife 12 years. Got Dx 6mth ago with PPMS. Getting my 1st 1/2 dose of Ocevurs 13th, ugh next week.

Some good days some bad, but keeping positive. We all have our boo hoo days but hell, what's the point?

I've gotten a lot of positive feedback here and plan to stay, you should too.

RoyceNewton profile image
RoyceNewton

WOW< ms at that age. Mate, you had a life, was it a good one? Is it still a good one? San Diego, bit far from me, but G'Day anyway. Tell us a story about you, make it a good one with are generally a receptive audience, if a little forgetful bur you can not expect everything.

Royce

LissaH profile image
LissaH

hello efftee, welcome to our family. Here you will find plenty of friends and feel like family just as I have. We may not be close to were you live but we are always right here when you need us. Just jump online and here were are, always ready to listen, give advice, compare note, and laugh. I hope you will like it here. :-)

LissaH

JennyO1015 profile image
JennyO1015

Welcome to the site!! It’s a good place to be!! Hope you enjoy having somewhere to go when you have no where to go☺️

greaterexp profile image
greaterexp

We make a lot of quick friends here by sharing about ourselves and our MS. I'm glad you found this forum and hope you enjoy it as much as I have.

mymsaa.org/

Hi I am ssdw1958 I was diagnosed in 2004 I am married to a great guy have known him for 7 years and have been married for going on 35 years he puts up with my up and down feeling. I have two sons one stop in college and my other son is married with a:two year old and soon to have another baby girl.

I Live in Massachusetts we have been having some wet weather but today the sun finally came out yeah.

Since I’ve had to retire I am home all the time my husband doesn’t think it’s good for me to drive which really stinks but that’s how it goes this Friday I’m going to have another infusion of Ocrevus

I said to my husband I have to think positive this stuff I know it won’t take away the MS but if it would stop at that would really be appreciated if you know what I mean.

You should call M S Society just to find out if they know of groups in your area that you can talk to because I know I’ve gotten paperwork that have had groups you can join through the M S Society because these other groups or you really don’t know who they are not meaning that you know who the MS group is but there with the M S Society I hope all of this is making sense.

Well they won’t go again battling but this is a good site good people here if you have any questions someone would know it but you do have to understand we are not doctors so I would ask the group and then I would ask your doctor and sometimes if you have questions about your medications you should ask the pharmacist.

Well I’m gonna go for now have a great day and enjoy the weather we have sun yeah 😎🌞☀️

Jazzihorsecat profile image
Jazzihorsecat

A very warm welcome to our family here efftee, join on in here, we're all a great, supportive family, we'll be here whenever you need us!💪 & now you're family too!😀😃😄 Always remember that, watch your town's newspaper, or go to your neuro's office, usually there's a local M.S. support group, Many Blessings!!🌻🌞☀

Jazzy🌹💜

Peruzzot profile image
Peruzzot

Welcome to the group. We have a few who live in California, don't know about the San Diego area though. I'm in South Carolina. We're a fun group. But this is also the place to come and vent or share some tears...both sad and happy. We all get it...we all have it.

leking1 profile image
leking1

Hi efftee, and Welcome! We are so happy that you have joined us. You can talk, listen, comment or whatever

you need to do. We understand MS.

I was diagnosed in 1982 with RRMS,and it became SPMS 2010, but life goes on, and so do we! I'm on the other coast in NC.

ahrogers profile image
ahrogers

I used to live in Corona California but moved to South Carolina a little over a year ago. Look into your local walk ms event or other ms events. Even if you can't ride a bike you can volunteer at the bike ms event ( or any other event) and meet lots of people.

pamgarner profile image
pamgarner

welcome! we are a great group of people,this group has been a lifeline to me at times,just when I think I can't go one more step or give up one more thing,everyone pulls me back.You can scream,laugh ,cry and we all understand

goatgal profile image
goatgal

effete Welcome to the forum. It is a shock to be diagnosed with MS at any age, but increasingly, many of us are diagnosed just when we finally have time to do all the things that we enjoy...only to find out that MS, not age, is the impediment. I was born and raised in CA, spent most of my working life there, but retired to VA at 65, only to be diagnosed at 70 with MS. So I returned to CA but the housing I could afford was in a hot and wildfire prone area which proved untenable. I'm back in VA now in a climate better suited to my particular MS symptoms. Give me a week or two to think about this and I will find all that I want to say about seniors with MS. It is an isolating disease for anyone, but I find the challenges for seniors extreme. This forum is a lifesaver (almost literally) for me. I hope it meets some of your needs as well.

goatgal profile image
goatgal in reply to goatgal

Apologies for the typo at the start of my response!

sashaming1 profile image
sashaming1

There may be a MS Support Group in San Diego (I'd be surprised if there wasn't) that would help.

Weldon60 profile image
Weldon60

Welcome to the group. I was diagnosed when I was 32 and am now 60. It has certainly altered my life from what I expected it to do. I am a minister, but because of vision problems and fatigue (caused by MS) I work with smaller congregations. I am happy and satisfied overall.

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