Relapsing Remitting ms (RRms), we all have it or have had it. For Primary Progressive, I am sorry if technically I made a mistake. Anyway back to RRms, I am very sorry to say that there isa absolutely no cure on this planet today. If ‘YOU” find otherwise please tell us, I am sure other Newly Diagnosed (Newbies) would love to hear about it. Personally I have had RRms for twenty years and I am not sure what I would do without it. Yes, I understand that is not how “YOU” feel today. That is normal, and to be expected. Go online and find I believe it is called the stages of grief. Print it and stick it on your wall. Find where “YOU” think “YOU” are then see what will be ahead of “YOU” Now that “YOU” have that, “YOU” can start to understand what “YOU” are going through and what may be in your future. Your own little roadmap to begin what is a lifelong journey through life with RRms.
I am sorry I should have sad it is not terrible, unfortunate and any other negative thing that “YOU” can think of or people say to “YOU”. When people say o poor you, and various commiserations. Smile and ask them why it is not so bad. “YOU” WILL have not so good moments, days, weeks, but this is a condition of our chronic illness. Over time “YOU” will learn that some of it can be managed, avoided and medicated. This WILL take time, nobody including any form of Doctor has all the right answers for “YOU” As much as “YOU” can, learn about RRms in general and yours in particular. I used to hear a lot medical people saying, no to people with ms PWms) are the same. As I have travelled along my path I have come to the conclusion that this is actually true. My RRms is completely different to she who must be obeyeds RRms and having met lots of others with ms we all see to be different in some way. I would recommend gettin a chart of the Central Nervous system (CNS) and looking at all the areas that your RRms may affect, it is huge. It does make sense that we are all so different. This is a physical condition not a mental one. Emotions that “YOU have are sometimes affected by physical damage occurring in your CNS. “YOU” are NOT under any circumstances going mad, though it may seem that way sometimes. Drinking will not help “YOU” so be smart avoid it. Smoking tobacco will not help, just maybe kill “YOU” faster and we do not want that. Smoking cannabis may not help, certainly did not me but my pain of course had to be different. Opiods and the like were not much help neither was Ampyra. This is not to say that one hundred percent for sure they will not help “YOU”. Al through this journey it pays to be willing to experiment on yourself. As the Briish Special Air Service motto says, Who Dares Wins. Dare to do what has to be done to keep “YOU” moving along your RRms path, no matter how big the obstacle in front of “YOU” find away around it. Be smart, be observant and always ASK QUESTIONS. Keeping notes of the answers is a good idea as well, for future reference.
Relax a little, sit back and compose yourself there is work to be done, and “YOU” my friend are the subject. Do yourself a big favor and start surrounding yourself with some brightness, be it books, music, or even art. There is absolutely no reason to wallow in negativity. RRms for sixty years will give “YOU” enough of that.
Royce
This is a very long journey we take but how good it is we can decide
MS Relapse Toolkit
Relapsing, remitting, or just getting steadily worse? Cant tell.
MS relapse indications
MS relapses and your prevention plan...
